RECRUITING

Mapping Disease Pathways for Biliary Atresia

Conditions

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

This project will primarily evaluate the developmental/genetic basis of biliary atresia, the most common cause of liver failure at birth, and which accounts of half of all liver transplants performed worldwide in children.

Official Title

Coordinating Center- Mapping Disease Pathways for Biliary Atresia

Quick Facts

Study Start:2016-07-21
Study Completion:2035-07-21
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT03273049

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * living individuals who were diagnosed with Biliary Atresia and received or are about to receive a liver transplant from multiple participating centers (Children's Hospital of Pittsburgh, Kings College Hospital, Children's Hospital of Birmingham, and Hospital Sírio-Libanês).
  1. * No child participant in the care of the state will be enrolled, nor will patients in the care of temporary or informal guardians be enrolled

Contacts and Locations

Study Contact

Morgan L Paul, BSN
CONTACT
4126928472
Morgan.Paul2@upmc.edu
Daniel Pieratt, MPA
CONTACT
4126926692
pierattdw@upmc.edu

Study Locations (Sites)

UPMC Children's Hospital of Pittsburgh
Pittsburgh, Pennsylvania, 15224
United States

Collaborators and Investigators

Sponsor: University of Pittsburgh

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2016-07-21
Study Completion Date2035-07-21

Study Record Updates

Study Start Date2016-07-21
Study Completion Date2035-07-21

Terms related to this study

Additional Relevant MeSH Terms

  • Biliary Atresia