Clinical Procedures to Support Research in ALS

Description

The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.

Conditions

Amyotrophic Lateral Sclerosis, ALS-Frontotemporal Dementia, Primary Lateral Sclerosis, Progressive Muscular Atrophy

Study Overview

Study Details

Study overview

The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.

Clinical Procedures to Support Research in ALS (CAPTURE-ALS)

Clinical Procedures to Support Research in ALS

Condition
Amyotrophic Lateral Sclerosis
Intervention / Treatment

-

Contacts and Locations

Irvine

University of California, Irvine, Irvine, California, United States, 92868

Palo Alto

Stanford University, Palo Alto, California, United States, 94304

San Francisco

California Pacific Medical Center, San Francisco, California, United States, 94115

Miami

University of Miami, Miami, Florida, United States, 33136

Kansas City

University of Kansas Medical Center, Kansas City, Kansas, United States, 66205

Minneapolis

Hennepin County Medical Center, Minneapolis, Minnesota, United States, 55404

New York

Columbia University, New York, New York, United States, 10032

Durham

Duke University, Durham, North Carolina, United States, 27708

Winston-Salem

Wake Forest University, Winston-Salem, North Carolina, United States, 27157

Portland

Providence Health & Services, Portland, Oregon, United States, 97213

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
  • * Receiving care at a clinical center that uses Epic as its EHR.
  • * Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
  • * Inability to understand English and/or Spanish

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

University of Miami,

Michael Benatar, MBChB, MS, DPhil, PRINCIPAL_INVESTIGATOR, University of Miami

Study Record Dates

2025-06