RECRUITING

Multiple System Atrophy Multidisciplinary Clinic

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

This is a prospective cohort study to examine the disease burden of multiple system atrophy and the impact of multidisciplinary care on quality of life and caregiver burden. Data will be collected through valid rating scales completed by patients and caregivers at home or in the MSA clinic.

Official Title

Multiple System Atrophy Multidisciplinary Clinic

Quick Facts

Study Start:2016-03
Study Completion:2028-03
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT03811808

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Subject must be a patient in the UT Southwestern MSA clinic and be able to attend the multidisciplinary clinic every 4 months
  2. * Patients with possible or probable MSA based on established criteria
  3. * Subjects must be 18 years or older
  1. * Patients that are unable to give consent
  2. * Minor patients (younger than age 18)
  3. * Non-English speaking patients
  4. * Subjects that are diagnosed with dementia

Contacts and Locations

Study Contact

Amy Conger
CONTACT
214-648-0214
Amy.Conger@UTSouthwestern.edu
Steve Hopkins, CCRC
CONTACT
214-648-9275
Steve.Hopkins@UTSouthwestern.edu

Principal Investigator

Steven Vernino, M.D.
PRINCIPAL_INVESTIGATOR
UT Southwestern Medical Center

Study Locations (Sites)

UT Southwestern Medical Center
Dallas, Texas, 75390
United States

Collaborators and Investigators

Sponsor: University of Texas Southwestern Medical Center

  • Steven Vernino, M.D., PRINCIPAL_INVESTIGATOR, UT Southwestern Medical Center

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2016-03
Study Completion Date2028-03

Study Record Updates

Study Start Date2016-03
Study Completion Date2028-03

Terms related to this study

Additional Relevant MeSH Terms

  • Multiple System Atrophy (MSA)