Multiple System Atrophy Multidisciplinary Clinic

Description

This is a prospective cohort study to examine the disease burden of multiple system atrophy and the impact of multidisciplinary care on quality of life and caregiver burden. Data will be collected through valid rating scales completed by patients and caregivers at home or in the MSA clinic.

Conditions

Multiple System Atrophy (MSA)

Study Overview

Study Details

Study overview

This is a prospective cohort study to examine the disease burden of multiple system atrophy and the impact of multidisciplinary care on quality of life and caregiver burden. Data will be collected through valid rating scales completed by patients and caregivers at home or in the MSA clinic.

Multiple System Atrophy Multidisciplinary Clinic

Multiple System Atrophy Multidisciplinary Clinic

Condition
Multiple System Atrophy (MSA)
Intervention / Treatment

-

Contacts and Locations

Dallas

UT Southwestern Medical Center, Dallas, Texas, United States, 75390

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Subject must be a patient in the UT Southwestern MSA clinic and be able to attend the multidisciplinary clinic every 4 months
  • * Patients with possible or probable MSA based on established criteria
  • * Subjects must be 18 years or older
  • * Patients that are unable to give consent
  • * Minor patients (younger than age 18)
  • * Non-English speaking patients
  • * Subjects that are diagnosed with dementia

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

University of Texas Southwestern Medical Center,

Steven Vernino, M.D., PRINCIPAL_INVESTIGATOR, UT Southwestern Medical Center

Study Record Dates

2028-03