RECRUITING

Hidradenitis Suppurativa Prospective Observational Registry and Biospecimen Repository

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Hidradenitis suppurativa (HS) is a common and debilitating skin disease that is poorly understood and understudied. As a result, little is known about disease prognosis and few effective treatments exist for this condition. This prospective observational cohort study aims to comprehensively characterize the clinical and biological features of HS. The results of this research will provide a basis for the development of an HS clinical classification system and identification of potential treatments for HS.

Official Title

Hidradenitis Suppurativa Prospective Observational Registry and Biospecimen Repository

Quick Facts

Study Start:2020-08-01
Study Completion:2030-01-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT04115566

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:10 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Not specified
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. 1. Male or female ≥ 10 years of age
  2. 2. Diagnosis of HS by a dermatologist or practitioner experienced in making a diagnosis of HS
  3. 3. Written informed consent (and assent when applicable) obtained from subject or subject's legal representative and ability for subject to comply with the requirements of the study.
  1. 1. Inability to give informed consent or unavailability of a parent/guardian who is able and willing to give informed consent.

Contacts and Locations

Study Contact

Ashley Yates, MMS, PA-C
CONTACT
415-514-7655
hsprogress@ucsf.edu

Principal Investigator

Haley B Naik, MD, MHSc, FAAD
PRINCIPAL_INVESTIGATOR
University of California, San Francisco

Study Locations (Sites)

University of California San Francisco
San Francisco, California, 94115
United States

Collaborators and Investigators

Sponsor: University of California, San Francisco

  • Haley B Naik, MD, MHSc, FAAD, PRINCIPAL_INVESTIGATOR, University of California, San Francisco

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2020-08-01
Study Completion Date2030-01-01

Study Record Updates

Study Start Date2020-08-01
Study Completion Date2030-01-01

Terms related to this study

Additional Relevant MeSH Terms

  • Hidradenitis Suppurativa