The goal of this study is to conduct a prospective, longitudinal natural history study of children and adults with Angelman Syndrome using investigator-observed and parent-reported outcome measures to obtain data that will be useful for future clinical trials.
Angelman Syndrome
The goal of this study is to conduct a prospective, longitudinal natural history study of children and adults with Angelman Syndrome using investigator-observed and parent-reported outcome measures to obtain data that will be useful for future clinical trials.
Angelman Syndrome Natural History Study
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Rady Children's Hospital, San Diego, San Diego, California, United States, 92123
Emory University School of Medicine, Atlanta, Georgia, United States, 30322
Rush University Children's Hospital, Chicago, Illinois, United States, 60612
Boston Children's Hospital, Boston, Massachusetts, United States, 02115
The Carolina Institute for Developmental Disabilities, Carrboro, North Carolina, United States, 27510
Monroe Carell Jr. Children's Hospital at Vanderbilt, Nashville, Tennessee, United States, 37232
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
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ALL
No
Boston Children's Hospital,
Wen-Hann Tan, BMBS, STUDY_CHAIR, Boston Children's Hospital
2025-08