Neurocutaneous Melanocytosis Registry

Description

This study will involve collecting information about the regular medical care you receive for large cutaneous melanocytic nevi (LCMN) or neurocutaneous melanocytosis (NCM).

Conditions

Cutaneous Melanocytic Neoplasm, Large Cutaneous Melanocytic Nevi, Neurocutaneous Melanocytosis

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Study Overview

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Study Details

Study overview

This study will involve collecting information about the regular medical care you receive for large cutaneous melanocytic nevi (LCMN) or neurocutaneous melanocytosis (NCM).

Prospective Registry of Patients With Neurocutaneous Melanocytosis (NCM) Including Cutaneous and CNS Involvement

Neurocutaneous Melanocytosis Registry

Condition
Cutaneous Melanocytic Neoplasm
Intervention / Treatment

-

Contacts and Locations

Boston

Boston Children's Hospital (Data Analysis Only), Boston, Massachusetts, United States, 02115

New York

Memorial Sloan Kettering Cancer Center (All Protocol Activities), New York, New York, United States, 10065

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Patients with LCMN, defined as:
  • * Dark-colored patch of skin present at birth
  • * Can be located anywhere on the individual's skin
  • * May include satellite lesions
  • * May be associated with hypertrichosis
  • * histologically or radiographically confirmed CNS melanocytosis.
  • * Any age at diagnosis.
  • * Signed informed consent by a patient, or parent/legal guardian.
  • * Deceased patients can be included provided that parent/legal guardian is contacted at least 6 months after the death of the child and not on the child's birthday or anniversary of death.
  • * Informed consent has not been provided.

Ages Eligible for Study

to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Memorial Sloan Kettering Cancer Center,

Yasmin Khakoo, MD, PRINCIPAL_INVESTIGATOR, Memorial Sloan Kettering Cancer Center

Study Record Dates

2027-09-03