RECRUITING

Neurocutaneous Melanocytosis Registry

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Conditions

Cutaneous Melanocytic NeoplasmLarge Cutaneous Melanocytic NeviNeurocutaneous MelanocytosisLCMNNCM20-363Memorial Sloan Kettering Cancer Center

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Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

This study will involve collecting information about the regular medical care you receive for large cutaneous melanocytic nevi (LCMN) or neurocutaneous melanocytosis (NCM).

Official Title

Prospective Registry of Patients With Neurocutaneous Melanocytosis (NCM) Including Cutaneous and CNS Involvement

Quick Facts

Study Start:2020-09-03
Study Completion:2027-09-03
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT04548817

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Patients with LCMN, defined as:
  2. * Dark-colored patch of skin present at birth
  3. * Can be located anywhere on the individual's skin
  4. * May include satellite lesions
  5. * May be associated with hypertrichosis
  6. * histologically or radiographically confirmed CNS melanocytosis.
  7. * Any age at diagnosis.
  8. * Signed informed consent by a patient, or parent/legal guardian.
  9. * Deceased patients can be included provided that parent/legal guardian is contacted at least 6 months after the death of the child and not on the child's birthday or anniversary of death.
  1. * Informed consent has not been provided.

Contacts and Locations

Study Contact

Yasmin Khakoo, MD
CONTACT
212-639-8292
khakooy@mskcc.org
Sofia Haque, MD
CONTACT
212-639-7170
haques@MSKCC.ORG

Principal Investigator

Yasmin Khakoo, MD
PRINCIPAL_INVESTIGATOR
Memorial Sloan Kettering Cancer Center

Study Locations (Sites)

Boston Children's Hospital (Data Analysis Only)
Boston, Massachusetts, 02115
United States
Memorial Sloan Kettering Cancer Center (All Protocol Activities)
New York, New York, 10065
United States

Collaborators and Investigators

Sponsor: Memorial Sloan Kettering Cancer Center

  • Yasmin Khakoo, MD, PRINCIPAL_INVESTIGATOR, Memorial Sloan Kettering Cancer Center

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2020-09-03
Study Completion Date2027-09-03

Study Record Updates

Study Start Date2020-09-03
Study Completion Date2027-09-03

Terms related to this study

Keywords Provided by Researchers

  • large cutaneous melanocytic nevi
  • LCMN
  • neurocutaneous melanocytosis
  • NCM
  • 20-363
  • Memorial Sloan Kettering Cancer Center

Additional Relevant MeSH Terms

  • Cutaneous Melanocytic Neoplasm
  • Large Cutaneous Melanocytic Nevi
  • Neurocutaneous Melanocytosis