ConTTRibute: A Global Observational Study of Patients With Transthyretin (TTR)-Mediated Amyloidosis (ATTR Amyloidosis)

Description

The purpose of this study is to: * Describe epidemiological and clinical characteristics, natural history and real-world clinical management of ATTR amyloidosis patients * Characterize the safety and effectiveness of patisiran and vutrisiran as part of routine clinical practice in the real-world clinical setting * Describe disease emergence/progression in pre-symptomatic carriers of a known disease-causing transthyretin (TTR) variant

Conditions

Transthyretin-Mediated Amyloidosis, ATTR Amyloidosis

Study Overview

Study Details

Study overview

The purpose of this study is to: * Describe epidemiological and clinical characteristics, natural history and real-world clinical management of ATTR amyloidosis patients * Characterize the safety and effectiveness of patisiran and vutrisiran as part of routine clinical practice in the real-world clinical setting * Describe disease emergence/progression in pre-symptomatic carriers of a known disease-causing transthyretin (TTR) variant

ConTTRibute: A Global Observational Multicenter Long-Term Study of Patients With Transthyretin (TTR)-Mediated Amyloidosis (ATTR Amyloidosis)

ConTTRibute: A Global Observational Study of Patients With Transthyretin (TTR)-Mediated Amyloidosis (ATTR Amyloidosis)

Condition
Transthyretin-Mediated Amyloidosis
Intervention / Treatment

-

Contacts and Locations

La Jolla

Clinical Trial Site, La Jolla, California, United States, 92037

Los Angeles

Clinical Trial Site, Los Angeles, California, United States, 90095

Jacksonville

Clinical Trial Site, Jacksonville, Florida, United States, 32224

Iowa City

Clinical Trial Site, Iowa City, Iowa, United States, 52242

Kansas City

Clinical Trial Site, Kansas City, Kansas, United States, 66160

Baltimore

Clinical Trial Site, Baltimore, Maryland, United States, 21224

Boston

Clinical Trial Site, Boston, Massachusetts, United States, 02127

New York

Clinical Trial Site, New York, New York, United States, 10034

Durham

Clinical Trial Site, Durham, North Carolina, United States, 27710

Columbus

Clinical Trial Site, Columbus, Ohio, United States, 43210

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Diagnosis of ATTR amyloidosis or documented known disease-causing TTR variant for the cohort of pre-symptomatic carriers
  • * Germany Only: Patients must be treated per the summary of product characteristics (SmPC) for any approved treatment for ATTR amyloidosis
  • * Current enrollment in a clinical trial for any investigational agent

Ages Eligible for Study

to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Alnylam Pharmaceuticals,

Medical Director, STUDY_DIRECTOR, Alnylam Pharmaceuticals

Study Record Dates

2030-09-01