Compared to the general population, individuals from underserved communities are more likely to receive low quality end-of-life care and unwanted, costly and burdensome treatments due in part to a lack of advance care planning (ACP; the process of discussing wishes for end-of-life care with loved ones/clinicians and documenting them in advance directives). This study will use existing, trusted, and respected social networks to evaluate two conversation-based tools intended to engage underserved individuals in discussions about end-of-life issue and motivate them to carry out ACP behaviors. Through this study, investigators will learn how best to engage underserved populations in ACP so as to: 1) increase the likelihood that patients from underserved communities will receive high-quality end-of-life care; 2) address health disparities related to end-of-life treatments; and 3) reduce unnecessary suffering for patients and their families.
Advance Care Planning, Advance Directives, Terminal Illness, Chronic Illness, Communication
Compared to the general population, individuals from underserved communities are more likely to receive low quality end-of-life care and unwanted, costly and burdensome treatments due in part to a lack of advance care planning (ACP; the process of discussing wishes for end-of-life care with loved ones/clinicians and documenting them in advance directives). This study will use existing, trusted, and respected social networks to evaluate two conversation-based tools intended to engage underserved individuals in discussions about end-of-life issue and motivate them to carry out ACP behaviors. Through this study, investigators will learn how best to engage underserved populations in ACP so as to: 1) increase the likelihood that patients from underserved communities will receive high-quality end-of-life care; 2) address health disparities related to end-of-life treatments; and 3) reduce unnecessary suffering for patients and their families.
Project Talk Trial: Engaging Underserved Communities in End-of-life Conversations
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Pincham-Lincoln Community Center, Athens, Alabama, United States, 35611
El Rio Neighborhood Center, Tucson, Arizona, United States, 85745
Promotores y Promotoras, Santa Paula, California, United States, 93060
Our Lady of Solitude, Soledad, California, United States, 93960
Vitas, Walnut Creek, California, United States, 94590
University of Colorado Hospital, Aurora, Colorado, United States, 80045
HopeWest Montrose, Montrose, Colorado, United States, 81401
MedStar Washington Hospital Center, Washington, District of Columbia, United States, 20020
High Point Neighborhood Family Center, Clearwater, Florida, United States, 33760
St. Phillip AME Church, Tallahassee, Florida, United States, 32308
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
18 Years to
ALL
Yes
Milton S. Hershey Medical Center,
Lauren J. Van Scoy, MD, PRINCIPAL_INVESTIGATOR, Penn State Milton S. Hershey Medical Center; Penn State University College of Medicine
2026-01-31