RECRUITING

The T1D Exchange Registry

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The T1D Exchange Registry is a research study, conducted over time, for individuals with type 1 diabetes and their supporters. Participants volunteer to provide their data for research (for example, by answering questions in annual surveys). Once enrolled, Registry participants have the opportunity to sign up for other studies on various topics related to type 1 diabetes. To participate, you will be asked to: * Read and sign an online informed consent form * Take a survey describing specific demographic and type 1 diabetes management information * Update your information annually * Periodically opt in for additional research opportunities (if you choose), i.e. taking new surveys or uploading health device data

Official Title

The T1D Exchange Registry

Quick Facts

Study Start:2018-12-13
Study Completion:2030-12-31
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT04629586

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Clinical diagnosis of type 1 diabetes.
  2. * Individuals younger than 18 years of age must have parent/guardian consent.
  3. * Must be able to read and understand English.
  4. * Currently living in the United States
  1. * Does not use insulin and has not had a pancreatic or islet cell transplant.
  2. * Cannot fully read and understand English.
  3. * Does not currently live in the United States.

Contacts and Locations

Study Contact

Kelsie LaFerrier
CONTACT
(617) 892-9941
klaferriere@t1dexchange.org
Julia Ravelson
CONTACT
(617) 892-9941
jravelson@t1dexchange.org

Study Locations (Sites)

T1D Exchange
Boston, Massachusetts, 02111
United States

Collaborators and Investigators

Sponsor: T1D Exchange, United States

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2018-12-13
Study Completion Date2030-12-31

Study Record Updates

Study Start Date2018-12-13
Study Completion Date2030-12-31

Terms related to this study

Keywords Provided by Researchers

  • insulin
  • t1d
  • dm
  • diabetes
  • type 1
  • glucagon

Additional Relevant MeSH Terms

  • Diabetes Mellitus, Type 1
  • Diabetes
  • Type 1 Diabetes
  • Diabetes Mellitus