RECRUITING

A Registry for the Food Allergy Community

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The FARE Patient Registry will serve as a prospective, observational food allergy reporting system that stores detailed health and other basic information about patients' real-world experiences with food allergies, to encourage open sharing of de-identified data and participation in clinical trials. The FARE Patient Registry intends to make and support scientific discoveries by enabling the food allergy community to participate directly in research.

Official Title

The FARE Patient Registry: A Registry for the Food Allergy Community

Quick Facts

Study Start:2017-08-24
Study Completion:2027-08
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT04653324

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Not specified
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Individuals with diagnosed food allergy
  1. * Individuals without food allergy

Contacts and Locations

Study Contact

Patient Registry Coordinator
CONTACT
1-800-929-4040
farepatientregistry@foodallergy.org

Principal Investigator

Jennifer Bufford, MS
PRINCIPAL_INVESTIGATOR
Food Allergy Research & Education

Study Locations (Sites)

Food Allergy Research & Education
McLean, Virginia, 22102
United States

Collaborators and Investigators

Sponsor: Food Allergy Research & Education

  • Jennifer Bufford, MS, PRINCIPAL_INVESTIGATOR, Food Allergy Research & Education

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2017-08-24
Study Completion Date2027-08

Study Record Updates

Study Start Date2017-08-24
Study Completion Date2027-08

Terms related to this study

Keywords Provided by Researchers

  • food allergy

Additional Relevant MeSH Terms

  • Food Hypersensitivity
  • Anaphylaxis
  • Eosinophilic Esophagitis
  • Food Sensitivity
  • Food Intolerance
  • Food Allergy in Infants