Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Description

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Conditions

Desmoplastic Small Round Cell Tumor

Study Overview

Study Details

Study overview

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Registry for Patients With Desmoplastic Small Round Cell Tumor

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Condition
Desmoplastic Small Round Cell Tumor
Intervention / Treatment

-

Contacts and Locations

New York

Memorial Sloan Kettering Cancer Center (All Protocol Activities), New York, New York, United States, 10065

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Participants must have a diagnosis of desmoplastic small round cell tumor
  • * Participants may be of any age as long as the appropriate consent and assent may be obtained
  • * Willing to provide historical and longitudinal clinical data
  • * Participant unwilling to provide consent or share historical and longitudinal clinical data

Ages Eligible for Study

to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Memorial Sloan Kettering Cancer Center,

Emily Slotkin, MD, PRINCIPAL_INVESTIGATOR, Memorial Sloan Kettering Cancer Center

Study Record Dates

2027-12