RECRUITING

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Official Title

Registry for Patients With Desmoplastic Small Round Cell Tumor

Quick Facts

Study Start:2020-12-22
Study Completion:2027-12
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT04690374

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Participants must have a diagnosis of desmoplastic small round cell tumor
  2. * Participants may be of any age as long as the appropriate consent and assent may be obtained
  3. * Willing to provide historical and longitudinal clinical data
  1. * Participant unwilling to provide consent or share historical and longitudinal clinical data

Contacts and Locations

Study Contact

Emily Slotkin, MD
CONTACT
1-833-675-5437
slotkine@mskcc.org
Shakeel Modak, MD
CONTACT
1-833-675-5437

Principal Investigator

Emily Slotkin, MD
PRINCIPAL_INVESTIGATOR
Memorial Sloan Kettering Cancer Center

Study Locations (Sites)

Memorial Sloan Kettering Cancer Center (All Protocol Activities)
New York, New York, 10065
United States

Collaborators and Investigators

Sponsor: Memorial Sloan Kettering Cancer Center

  • Emily Slotkin, MD, PRINCIPAL_INVESTIGATOR, Memorial Sloan Kettering Cancer Center

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2020-12-22
Study Completion Date2027-12

Study Record Updates

Study Start Date2020-12-22
Study Completion Date2027-12

Terms related to this study

Keywords Provided by Researchers

  • Patient registry
  • 20-551

Additional Relevant MeSH Terms

  • Desmoplastic Small Round Cell Tumor