Using Information Technology to Improve Outcomes for Children Living With Cancer

Description

This proposed study plans to develop and evaluate a patient-oriented, technology-based, symptom monitoring system that reports symptoms experienced by children with cancer to their parents and health care providers.

Conditions

Cancer

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Study Overview

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Study Details

Study overview

This proposed study plans to develop and evaluate a patient-oriented, technology-based, symptom monitoring system that reports symptoms experienced by children with cancer to their parents and health care providers.

Using Information Technology to Improve Outcomes for Children Living With Cancer

Using Information Technology to Improve Outcomes for Children Living With Cancer

Condition
Cancer
Intervention / Treatment

-

Contacts and Locations

Chicago

Ann & Robert H. Lurie Childrens Hospital of Chicago, Chicago, Illinois, United States, 60611

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Have an hematology/oncologic diagnosis (including a brain tumor)
  • * Be on-treatment or within 6 months post-therapy
  • * Be between 8 and 17 years old
  • * English-speaking
  • * Have sufficient cognitive and motor abilities to complete survey via an electronic device (e.g., smartphone, iPAD, etc.) or computer
  • * Be able and willing to sign assent forms (for those 12-17 years old).
  • * Be a parent (father or mother) or a legal guardian of eligible patients
  • * Demonstrates sufficient English and/or Spanish ability to understand and sign the informed consent form
  • * Have sufficient cognitive and motor abilities to complete survey via an electronic device (e.g., smartphone, iPAD, etc) or computer
  • * Patients who cannot understand English sufficiently to sign consent/assent form
  • * Patients who cannot understand English sufficiently to complete the questionnaires

Ages Eligible for Study

8 Years to 17 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Northwestern University,

Jin-Shei Lai, PhD, PRINCIPAL_INVESTIGATOR, Northwestern University

Study Record Dates

2025-12-31