An Ethical Approach to Detecting Covert Consciousness

Description

This study aims to develop an ethical approach to developing and deploying novel neurotechnologies to aid in the detection of consciousness and prediction of recovery after brain injury.

Conditions

Disorder of Consciousness

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Study Overview

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Study Details

Study overview

This study aims to develop an ethical approach to developing and deploying novel neurotechnologies to aid in the detection of consciousness and prediction of recovery after brain injury.

An Ethical Approach to Detecting Covert Consciousness: Data-Driven Neuroethics for Consciousness Detection (DECODE)

An Ethical Approach to Detecting Covert Consciousness

Condition
Disorder of Consciousness
Intervention / Treatment

-

Contacts and Locations

Boston

Massachusetts General Hospital, Boston, Massachusetts, United States, 02114

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Patients with prior or ongoing participation as subject in a research study using neurotechnologies for diagnosis and prognosis of disorders of consciousness (DoC) at Mass General Brigham
  • * Patients capable of understanding and answering questions in English
  • * Patients cble to provide informed consent
  • * Patients for whom MRI / EEG are administered for clinical detection of consciousness and/or neuroprognostication
  • * Family member or surrogate caregiver of patients who previously participated or are currently participating in a research study using neurotechnologies for diagnosis and prognosis of DoC at Mass General Brigham.
  • * Family Members / Surrogates capable of understanding and answering questions in English
  • * Family Members / Surrogates able to provide informed consent
  • * Family member or surrogate caregiver of patients for whom MRI / EEG are administered for clinical detection of consciousness and/or neuroprognostication
  • * Research Investigators involved with research responsibilities in designing or testing neurotechnologies on patients with DoC.
  • * Clinicians with clinical responsibilities caring for patients in behaviorally unresponsive state, defined as coma, vegetative state (VS), and low-level minimally conscious state (MCS).
  • * Selected leaders and advisors (Community and Thought Leaders) from brain injury associations and advocacy organizations, and policy-makers involved in decision-making impacting patients with DoC.

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Massachusetts General Hospital,

Michael Young, MD, PRINCIPAL_INVESTIGATOR, Mass General Brigham

Study Record Dates

2025-07