Measuring Impact of Computer Gaming on Arm Use in Rett Syndrome

Description

Using a tele-research approach, we will recruit, enroll, guide and support carers and participants to engage in computer based activities (modified virtual reality) with the primary outcome of reducing stereotypies and increasing independent arm and hand use and secondary outcome of improving quality of living. Because of our virtual approach, we are able to recruit from multiple countries and all states and territories of the USA.

Conditions

Rett Syndrome

Study Overview

Study Details

Study overview

Using a tele-research approach, we will recruit, enroll, guide and support carers and participants to engage in computer based activities (modified virtual reality) with the primary outcome of reducing stereotypies and increasing independent arm and hand use and secondary outcome of improving quality of living. Because of our virtual approach, we are able to recruit from multiple countries and all states and territories of the USA.

Assessing the Effectiveness of Customized Computer Activities on Reducing Stereotypies and Improving Independent Upper Extremity Motor Skills in Persons with Rett Syndrome

Measuring Impact of Computer Gaming on Arm Use in Rett Syndrome

Condition
Rett Syndrome
Intervention / Treatment

-

Contacts and Locations

Washington

Georgetown University School of Medicine, Washington, District of Columbia, United States, 20057

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Rett syndrome,
  • * Understanding of cause and effect,
  • * Functional range of motion of arms to complete the movements needed to control the games.
  • * no competing orthopedic or neuromuscular diagnosis that impacts shoulder movements

Ages Eligible for Study

4 Years to 60 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Georgetown University,

Study Record Dates

2025-12-01