COMPLETED

Ubuntu - I Am Because We Are

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The program will provide Advocacy and Support for Black patients with advanced-stage cancer in the Pittsburgh area. The goals are to: 1) provide a community-based, trained companion to journey alongside the patient with advanced cancer, 2) to help the individual explore meaning and create legacy, 3); offer support and navigation for practical needs of illness (e.g., financial assistance for food and housing, accessing and affording medications, transportation); and 4) to provide support and connection for the bereaved family/friends, including facilitating community connections for routine health screenings and access to mental health services, as needed.

Official Title

Ubuntu - I Am Because We Are, Caring for Black Patients With Advanced Stage Cancer

Quick Facts

Study Start:2022-03-13
Study Completion:2025-07-02
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:COMPLETED

Study ID

NCT05314179

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:FEMALE
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. 1. have stage IV cancer
  2. 2. identify as Black or African American 3. Participants must reside in or around Pittsburgh, Pennsylvania area
  1. 1. Do not live in the Pittsburgh region

Contacts and Locations

Principal Investigator

Margaret Quinn Rosenzweig, PhD
PRINCIPAL_INVESTIGATOR
UPMC Hillman Cancer Center

Study Locations (Sites)

UPMC Hillman Cancer Center
Pittsburgh, Pennsylvania, 15232
United States

Collaborators and Investigators

Sponsor: University of Pittsburgh

  • Margaret Quinn Rosenzweig, PhD, PRINCIPAL_INVESTIGATOR, UPMC Hillman Cancer Center

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2022-03-13
Study Completion Date2025-07-02

Study Record Updates

Study Start Date2022-03-13
Study Completion Date2025-07-02

Terms related to this study

Keywords Provided by Researchers

  • doula

Additional Relevant MeSH Terms

  • Metastatic Cancer