Patient- Generated Health Data to Predict Childhood Cancer Survivorship Outcomes

Description

Some childhood cancer survivors have health problems as the result of previous cancer treatment. This study is being done to determine if we can better predict the risk a childhood cancer survivor might have for developing future health issues. The goal of this study is to enable regular monitoring of patient-generated health data (PGHD), including symptoms, physical activity, energy expenditure, sleep behavior and heart rate variability, and utilize these data in predicting survivor-specific risk of late effects to improve survivorship care and outcomes.

Conditions

Survivorship, Childhood Cancer

Study Overview

Study Details

Study overview

Some childhood cancer survivors have health problems as the result of previous cancer treatment. This study is being done to determine if we can better predict the risk a childhood cancer survivor might have for developing future health issues. The goal of this study is to enable regular monitoring of patient-generated health data (PGHD), including symptoms, physical activity, energy expenditure, sleep behavior and heart rate variability, and utilize these data in predicting survivor-specific risk of late effects to improve survivorship care and outcomes.

Patient- Generated Health Data to Predict Childhood Cancer Survivorship Outcomes

Patient- Generated Health Data to Predict Childhood Cancer Survivorship Outcomes

Condition
Survivorship
Intervention / Treatment

-

Contacts and Locations

Memphis

St. Jude Children's Research Hospital, Memphis, Tennessee, United States, 38105

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * ≥18 years of age at the time of study
  • * Enrolled on SJLIFE
  • * ≥5 years from initial diagnosis of pediatric cancer/malignancy
  • * Currently not receiving cancer therapies
  • * Access to web-enabled smartphone
  • * Known severe neurocognitive impairment (e.g., estimated intelligence score \[FSIQ\] \<70), which requires proxies to complete daily symptom and PRO surveys;
  • * \<3rd-grade reading level or not able to communicate in English;
  • * Currently pregnant or reports planning to become pregnant in the next two years;
  • * Lack of access to web-enabled smartphone, or not able to use/access internet from the device.

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

St. Jude Children's Research Hospital,

I-Chang Huang, PhD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

Study Record Dates

2026-06-20