Comparing Game Facilitated Interactivity to Genetic Counseling for Prenatal Screening Education

Description

Advancements in prenatal genetic screening have significantly improved the identification of chromosomal abnormalities and heritable conditions during pregnancy, yet current standards for patient education in this domain are largely ineffective. The most effective approach to education about prenatal screening is one-on-one genetic counseling, but due to the limited number of counselors this is not feasible, especially in rural and frontier areas. The investigators will address this national problem using a novel education game that can more effectively address this gap in healthcare decision-making.

Conditions

Genetic Counseling, Shared Decision Making, Pregnancy, Genetic Testing, Prenatal Disorder

Study Overview

Study Details

Study overview

Advancements in prenatal genetic screening have significantly improved the identification of chromosomal abnormalities and heritable conditions during pregnancy, yet current standards for patient education in this domain are largely ineffective. The most effective approach to education about prenatal screening is one-on-one genetic counseling, but due to the limited number of counselors this is not feasible, especially in rural and frontier areas. The investigators will address this national problem using a novel education game that can more effectively address this gap in healthcare decision-making.

Comparing Game Facilitated Interactivity to Genetic Counseling for Prenatal Screening Education

Comparing Game Facilitated Interactivity to Genetic Counseling for Prenatal Screening Education

Condition
Genetic Counseling
Intervention / Treatment

-

Contacts and Locations

Birmingham

University of Alabama, Birmingham, Alabama, United States, 35233

Chapel Hill

University of North Carolina, Chapel Hill, North Carolina, United States, 27599

Salt Lake City

University of Utah, Salt Lake City, Utah, United States, 84112

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * adult
  • * English-speaking people who are attending their first or second OB clinic visit including rural referral centers
  • * less than 15 weeks pregnant.
  • * Partner of the pregnant person who speaks English and is an adult
  • * Able to complete study tasks on a computer or smartphone from home
  • * already had prenatal screening from this or previous pregnancies,
  • * have obstetric or family history of chromosomal abnormalities, or genetic high-risk pregnancy and have already met with a genetic counseling about prenatal screening

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

Erin Rothwell,

Erin Rothwell, PhD, PRINCIPAL_INVESTIGATOR, University of Utah

Study Record Dates

2025-12