Improving Participation in Pulmonary Rehabilitation Through Peer Support and Storytelling

Description

Chronic Obstructive Pulmonary Disease (COPD) affects approximately 16 million Americans and is characterized by recurrent exacerbations that lead to 1.5 million Emergency Department visits and 700,000 hospitalizations annually. Pulmonary rehabilitation (PR) is a structured program of exercise and self-management support that has been proven to relieve shortness of breath and increase quality of life when initiated after an exacerbation, but unfortunately, few eligible patients participate. This project will compare the effectiveness of two novel strategies - one involving video narratives of other patients telling their story of how they overcame challenges and completed PR, the other involving telephonic peer coaching with an individual with lived experience - to enhanced usual care, and to each other, at increasing patient participation in PR after an exacerbation.

Conditions

Chronic Obstructive Pulmonary Disease

Study Overview

Study Details

Study overview

Chronic Obstructive Pulmonary Disease (COPD) affects approximately 16 million Americans and is characterized by recurrent exacerbations that lead to 1.5 million Emergency Department visits and 700,000 hospitalizations annually. Pulmonary rehabilitation (PR) is a structured program of exercise and self-management support that has been proven to relieve shortness of breath and increase quality of life when initiated after an exacerbation, but unfortunately, few eligible patients participate. This project will compare the effectiveness of two novel strategies - one involving video narratives of other patients telling their story of how they overcame challenges and completed PR, the other involving telephonic peer coaching with an individual with lived experience - to enhanced usual care, and to each other, at increasing patient participation in PR after an exacerbation.

Improving Participation in Pulmonary Rehabilitation Through Peer Support and Storytelling

Improving Participation in Pulmonary Rehabilitation Through Peer Support and Storytelling

Condition
Chronic Obstructive Pulmonary Disease
Intervention / Treatment

-

Contacts and Locations

Springfield

Baystate Health, Springfield, Massachusetts, United States, 01199

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * 40 years or older
  • * Received treatment for COPD exacerbation in either inpatient or outpatient setting
  • * Referred for pulmonary rehabilitation
  • * Ability to understand and communicate in English
  • * Willingness to participate in calls with peer coach and to view storytelling videos
  • * Working phone
  • * Unwilling to attend PR
  • * Not eligible for PR based on spirometry or other clinical contraindications as determined by PR staff
  • * Currently enrolled in, or completion of 12 or more sessions of PR in the past
  • * Comfort measures only or Hospice care
  • * Resident of long-term care facility
  • * Unable or unwilling to give informed consent

Ages Eligible for Study

40 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Baystate Medical Center,

Peter Lindenauer, MD, MSc, PRINCIPAL_INVESTIGATOR, Baystate Health

Study Record Dates

2026-08-31