RECRUITING

CIMR Neuromuscular Research Biobank

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.

Official Title

Center for Inherited Muscle Research Neuromuscular Research Biobank

Quick Facts

Study Start:2021-03-17
Study Completion:2030-02
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT05434572

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified to 75 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Willing and able to give informed consent
  2. * Positive diagnosis or suspected diagnosis of neuromuscular disease, or
  3. * Family history of neuromuscular disease, or
  4. * Healthy volunteer
  5. * Age Neonates-75
  1. * Unwilling to sign consent

Contacts and Locations

Study Contact

Nicholas Johnson
CONTACT
804-628-1624
nicholas.johnson@vcuhealth.org

Principal Investigator

Nicholas E. Johnson, MD
PRINCIPAL_INVESTIGATOR
Virginia Commonwealth University

Study Locations (Sites)

Virginia Commonwealth University
Richmond, Virginia, 23298
United States

Collaborators and Investigators

Sponsor: Virginia Commonwealth University

  • Nicholas E. Johnson, MD, PRINCIPAL_INVESTIGATOR, Virginia Commonwealth University

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2021-03-17
Study Completion Date2030-02

Study Record Updates

Study Start Date2021-03-17
Study Completion Date2030-02

Terms related to this study

Keywords Provided by Researchers

  • Neuromuscular
  • Research Repository
  • Biobank
  • Neuromuscular Disorder

Additional Relevant MeSH Terms

  • Neuromuscular Diseases
  • Neuromuscular Disorder
  • Neuromuscular Diseases in Children