Medication Adherence in Patients With Sarcoidosis

Description

The goal of the study is to look at the relationship between how individuals with Sarcoidosis take the sarcoidosis medicines and how it affects the disease, to evaluate any factors that may make individuals not want to take the medicines, and to develop and refine ways to help support individuals with Sarcoidosis especially when it comes to the medicines. The overall hypothesis is higher medication adherence will be associated with better clinical outcomes in sarcoidosis. The investigators will enroll 150 patients with biopsy proven pulmonary sarcoidosis for at least one year who are on any oral treatment regimen for at least six months into a 12-month longitudinal study.

Conditions

Medication Adherence, Sarcoidosis

Study Overview

Study Details

Study overview

The goal of the study is to look at the relationship between how individuals with Sarcoidosis take the sarcoidosis medicines and how it affects the disease, to evaluate any factors that may make individuals not want to take the medicines, and to develop and refine ways to help support individuals with Sarcoidosis especially when it comes to the medicines. The overall hypothesis is higher medication adherence will be associated with better clinical outcomes in sarcoidosis. The investigators will enroll 150 patients with biopsy proven pulmonary sarcoidosis for at least one year who are on any oral treatment regimen for at least six months into a 12-month longitudinal study.

Medication Adherence and Clinical Outcomes in Sarcoidosis

Medication Adherence in Patients With Sarcoidosis

Condition
Medication Adherence
Intervention / Treatment

-

Contacts and Locations

Baltimore

Johns Hopkins Bayview Asthma and Allergy Center, Baltimore, Maryland, United States, 21224

Timonium

Johns Hopkins Greenspring Station, Timonium, Maryland, United States, 21093

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * At least 18 years of age.
  • * Physician diagnosis of Sarcoidosis.
  • * Biopsy proven pulmonary involvement of Sarcoidosis.
  • * On oral Sarcoidosis medications for at least 6 months.
  • * Permanently reside in Maryland or D.C.
  • * Fully vaccinated against COVID-19.
  • * Non-english speaking.
  • * Unable to provide consent.
  • * Unable to participate in orally administered questionnaires.

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Johns Hopkins University,

Michelle Sharp, MD, MHS, PRINCIPAL_INVESTIGATOR, Johns Hopkins University

Study Record Dates

2025-08-31