TERMINATED

Cancer Parenting Program for the Enhancement of the Quality of Life of Patients With Advanced Cancer and Their Children

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Conditions

ParentingParent-Child RelationsCancerSurvivorshipHematopoietic and Lymphoid System NeoplasmMalignant Solid Neoplasm

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Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

This trial examines the usefulness of two educational programs for parents with late-stage cancer who have a 5 - 17 year old child. The programs are designed to enhance the quality of the parent-child relationship and add to the parent's confidence in managing the impact of their cancer on their child. Educational programs may reduce anxiety and depression and improve the well-being and quality of life of parents with advanced cancers and their children. Recruitment occurs nationally via referral to the Fred Hutch/University of Washington Cancer Consortium team.

Official Title

Enhancing Connections-Palliative Care: A Cancer Parenting Program for Patients With Advanced Cancer and Their Children

Quick Facts

Study Start:2022-07-19
Study Completion:2025-05-27
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:TERMINATED

Study ID

NCT05477784

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:23 Years to 68 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Parents with any type of late-stage, non-curable cancer (determined by TNM stage IV cancer for solid tumors or 2 or more cycles of treatment failure with disease relapse in non-solid tumors)
  2. * All therapies are allowable
  3. * 23 years (yr.) to 68 yr. Age restriction exists for the patient based on parent having a child ages 5-17
  4. * Patient must have a child (5yr. -17 yr.) living in the home at least 50% of the time and residential with non-ill parent or parent surrogate
  5. * Read and write English as one of their languages of choice
  6. * Have access to a telephone
  7. * Ability to understand and the willingness to sign a written informed consent document. Read and write English as one of their languages of choice
  1. * Patient is in hospice at time of enrollment
  2. * Non-ill co-parent does not consent to join study

Contacts and Locations

Principal Investigator

Frances M Lewis, RN, MN, PhD, FAAN
PRINCIPAL_INVESTIGATOR
University of Washington

Study Locations (Sites)

Georgetown University
Washington, District of Columbia, 20007
United States
Fred Hutch/University of Washington Cancer Consortium
Seattle, Washington, 98115
United States

Collaborators and Investigators

Sponsor: University of Washington

  • Frances M Lewis, RN, MN, PhD, FAAN, PRINCIPAL_INVESTIGATOR, University of Washington

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2022-07-19
Study Completion Date2025-05-27

Study Record Updates

Study Start Date2022-07-19
Study Completion Date2025-05-27

Terms related to this study

Additional Relevant MeSH Terms

  • Parenting
  • Parent-Child Relations
  • Cancer
  • Survivorship
  • Hematopoietic and Lymphoid System Neoplasm
  • Malignant Solid Neoplasm