This study will collect medical records, scan results, and complete surveys to create a registry about people with a neurofibromatosis type 1-associated brain tumor (NF1-associated glioma). A registry is a collection of health information about individuals, and it is usually focused on a specific diagnosis or condition. This registry study will help the researchers learn more about the diagnosis, treatment, and quality of life of people with NF1-associated glioma. The researchers want to understand what happens as a result of different treatments for NF1-associated glioma and how these treatments and the disease itself affect people's lives over a period of time. Information collected during this study could affect how doctors diagnose, test, and treat NF1-associated glioma, and the study could help future patients with this type of cancer.
Glioma
This study will collect medical records, scan results, and complete surveys to create a registry about people with a neurofibromatosis type 1-associated brain tumor (NF1-associated glioma). A registry is a collection of health information about individuals, and it is usually focused on a specific diagnosis or condition. This registry study will help the researchers learn more about the diagnosis, treatment, and quality of life of people with NF1-associated glioma. The researchers want to understand what happens as a result of different treatments for NF1-associated glioma and how these treatments and the disease itself affect people's lives over a period of time. Information collected during this study could affect how doctors diagnose, test, and treat NF1-associated glioma, and the study could help future patients with this type of cancer.
Glioma Developmental and HyperActive Ras Tumor (DHART) Board
-
Memorial Sloan Kettering Basking Ridge (All Protocol Activities), Basking Ridge, New Jersey, United States, 07920
Memorial Sloan Kettering Monmouth (All protocol activities), Middletown, New Jersey, United States, 07748
Memorial Sloan Kettering Bergen (All Protocol Activities), Montvale, New Jersey, United States, 07645
Memorial Sloan Kettering Suffolk - Commack (All Protocol Activities), Commack, New York, United States, 11725
Memorial Sloan Kettering Cancer Center (All Protocol Activities), New York, New York, United States, 10065
Memorial Sloan Kettering Nassau (All Protocol Activities), Rockville Centre, New York, United States, 11570
Memorial Sloan Kettering West Harrison (All Protocol Activities), West Harrison, New York, United States, 10604
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
18 Years to
ALL
No
Memorial Sloan Kettering Cancer Center,
Anna Piotrowski, PRINCIPAL_INVESTIGATOR, Memorial Sloan Kettering Cancer Center
2025-07-29