Patients At Risk for Sensory Screening (HPARSS) to Enhance Sensory Deficit Screening in Childhood Cancer Survivors

Description

The overall goal of this study is to attempt to overcome the organizational barriers that impede prompt screening for at-risk sensory deficits in childhood cancer survivors (CCS). Using a cross sectional design study, collaborators in the Informatics Research branch of the Institute of Informatics at the Washington University School of Medicine will identify CCS at risk for sensory deficits based upon their therapy exposure to generate the highlighting patients at risk for sensory screening (HPARSS) document. The investigators will utilize the HPARSS that will link therapy related risks for sensory deficits to specific screening procedures prompting the primary oncology provider to implement screening, diagnostic testing, and therapy.

Conditions

Childhood Cancer

Talk to us

Study Overview

On this page

Study Details

Study overview

The overall goal of this study is to attempt to overcome the organizational barriers that impede prompt screening for at-risk sensory deficits in childhood cancer survivors (CCS). Using a cross sectional design study, collaborators in the Informatics Research branch of the Institute of Informatics at the Washington University School of Medicine will identify CCS at risk for sensory deficits based upon their therapy exposure to generate the highlighting patients at risk for sensory screening (HPARSS) document. The investigators will utilize the HPARSS that will link therapy related risks for sensory deficits to specific screening procedures prompting the primary oncology provider to implement screening, diagnostic testing, and therapy.

Highlighting Patients At Risk for Sensory Screening (HPARSS) to Enhance Sensory Deficit Screening in Childhood Cancer Survivors

Patients At Risk for Sensory Screening (HPARSS) to Enhance Sensory Deficit Screening in Childhood Cancer Survivors

Condition
Childhood Cancer
Intervention / Treatment

-

Contacts and Locations

Saint Louis

St. Louis Children's Hospital - Washington University School of Medicine, Saint Louis, Missouri, United States, 63110

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Patients with a diagnosis of pediatric cancer (diagnosis at \<18 years of age)
  • * Treatment including chemotherapy and/or radiation therapy
  • * Completion of all cancer therapy for at least 6 months and less than 2 years
  • * Followed in the Division of Pediatric Hematology/Oncology Program at the Washington University School of Medicine
  • * Current age between 7 and 17 years of age (age where all of the screening tests are both valid and have been successfully performed by our group)
  • * English speaking
  • * Undergoing active cancer treatment
  • * Patient under the care of the Late Effects Program at St. Louis Children's Hospital
  • * Received previous diagnostic testing or rehabilitative therapy for a secondary deficit eligible for screening.
  • * Parents and/or patient illiteracy
  • * No contact with treatment team in the past two years
  • * In foster care or without a legal guardian

Ages Eligible for Study

7 Years to 17 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Washington University School of Medicine,

Robert J Hayashi, M.D., PRINCIPAL_INVESTIGATOR, Washington University School of Medicine

Study Record Dates

2025-05-31