Promoting Goals-of-Care Discussions for Patients With Memory Problems and Their Caregivers

Description

The goal of this clinical trial is to improve communication among clinicians, patients with memory problems, and their family members. We are testing a way to help clinicians have better conversations to address patients' goals for their healthcare. To do this, we created a simple, short guide called the "Jumpstart Guide." The goal of this research study is to show that using this kind of guide is possible and can be helpful for patients and their families. Patients' clinicians may receive a Jumpstart Guide before the patient's clinic visit. Researchers will compare patients whose clinician received a Jumpstart Guide to patients whose clinician did not receive a guide to see if more patients in the Jumpstart Guide group had conversations about the patient's goals for their healthcare. Patients and their family members will also be asked to complete surveys after the visit with their clinician.

Conditions

Dementia, Chronic Disease, Neoplasm Metastasis, Lung Neoplasm, Pulmonary Disease, Chronic Obstructive, Heart Failure,Congestive, Liver Cirrhosis, Kidney Failure, Chronic, Lung Diseases, Interstitial, Peripheral Vascular Diseases, Diabetes With End Organ Damage, Palliative Care, Patient Care, Health Care Quality, Access, and Evaluation, Patient Care, Health Communication, Patient Care Planning, Quality of Life

Study Overview

Study Details

Study overview

The goal of this clinical trial is to improve communication among clinicians, patients with memory problems, and their family members. We are testing a way to help clinicians have better conversations to address patients' goals for their healthcare. To do this, we created a simple, short guide called the "Jumpstart Guide." The goal of this research study is to show that using this kind of guide is possible and can be helpful for patients and their families. Patients' clinicians may receive a Jumpstart Guide before the patient's clinic visit. Researchers will compare patients whose clinician received a Jumpstart Guide to patients whose clinician did not receive a guide to see if more patients in the Jumpstart Guide group had conversations about the patient's goals for their healthcare. Patients and their family members will also be asked to complete surveys after the visit with their clinician.

Hybrid Efficacy-effectiveness Trial to Promote Goals-of-care Discussions for Patients With Alzheimer's Disease and Related Dementias and Their Family Caregivers

Promoting Goals-of-Care Discussions for Patients With Memory Problems and Their Caregivers

Condition
Dementia
Intervention / Treatment

-

Contacts and Locations

Seattle

Harborview Medical Center, Seattle, Washington, United States, 98104

Seattle

UW Medical Center, Seattle, Washington, United States, 98195

Seattle

UW Medicine Neighborhood Clinics, Seattle, Washington, United States, 98195

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Be cared for as an outpatient at a UW Medicine clinic
  • * 55 years of age or older
  • * Have an ICD-10 code for ADRD documented in the EHR within the prior two years
  • * restricted status, legal or risk management concerns
  • * without capacity to complete informed consent procedures and without a legal surrogate to enroll them (for the survey component or qualitative interviews)
  • * non-English speaking (for the survey component or qualitative interviews)

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

University of Washington,

Erin Kross, MD, PRINCIPAL_INVESTIGATOR, University of Washington

Study Record Dates

2027-07