International Rare Brain Tumor Registry

Description

The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.

Conditions

Astroblastoma, BCOR ITD Sarcoma, CNS Sarcoma, Unclassified Tumor, Malignant

Talk to us

Study Overview

On this page

Study Details

Study overview

The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.

International Rare Brain Tumor Registry

International Rare Brain Tumor Registry

Condition
Astroblastoma
Intervention / Treatment

-

Contacts and Locations

Washington

Children's National Hospital, Washington, District of Columbia, United States, 20010

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Patients with a known or suspected CNS Sarcoma.
  • * Patients with a known or suspected BCOR-altered brain tumor
  • * Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor
  • * Patients with known or suspected histologically ambiguous/unclassifiable brain tumor
  • * Patients with a known or suspected rare brain tumor.
  • * Signed informed consent by patient/ parent or guardian (assent where applicable) to participate in the study.
  • * The patient has an extra-CNS primary tumor.
  • * The patient is older than 46 years of age at diagnosis.
  • * The patient or family is not willing to participate or does not sign informed consent.

Ages Eligible for Study

to 45 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Children's National Research Institute,

Adriana Fonseca, MD, PRINCIPAL_INVESTIGATOR, afonsecash@childrensnational.org

Study Record Dates

2033-12