RECRUITING

Leukemia and Lymphoma Society (LLS) Services Impact on Outcomes and Care

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this study is to learn about the impact that the services and programs provided by the Leukemia and Lymphoma Society have among patients with blood cancer, such as access to care, quality of life, and financial burden.

Official Title

The Impact of a Non-Profit Cancer Advocacy Organization on Patient Reported Outcomes and Access to Care: A Multisite, Longitudinal Trial

Quick Facts

Study Start:2025-02-04
Study Completion:2026-11-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT05745285

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Be currently receiving primary or relapse treatment for a diagnosis of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN)
  2. * Report experiencing at least one unmet need addressed by the LLS Program (i.e., medical care including second opinions, travel for care, clinical trial access, financial and insurance needs, supportive programs, disease and treatment education)
  3. * Not be currently participating in any LLS programs or services
  4. * Be willing to be followed for 6 months
  5. * Speak English or Spanish
  1. * Are not receiving primary or relapse treatment for a diagnosis of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN)
  2. * Are not experiencing unmet needs addressed by the LLS Program (i.e., medical care including second opinions, travel for care, clinical trial access, financial and insurance needs, supportive programs, disease and treatment education)
  3. * Are currently participating in any LLS programs or services
  4. * Are not willing to be followed for 6 months
  5. * Do not speak English or Spanish.

Contacts and Locations

Study Contact

Magela Pons, BS
CONTACT
3052439642
m.pons1@umiami.edu
Carlos A Melara
CONTACT
cam32407@med.miami.edu

Principal Investigator

Frank Penedo, PhD
PRINCIPAL_INVESTIGATOR
University of Miami

Study Locations (Sites)

Sylvester Comprehensive Cancer Center
Miami, Florida, 33136
United States
University of Chicago Comprehensive Cancer Center
Chicago, Illinois, 60637
United States
Mays Cancer Center at UT Health San Antonio
San Antonio, Texas, 78229
United States

Collaborators and Investigators

Sponsor: University of Miami

  • Frank Penedo, PhD, PRINCIPAL_INVESTIGATOR, University of Miami

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2025-02-04
Study Completion Date2026-11-01

Study Record Updates

Study Start Date2025-02-04
Study Completion Date2026-11-01

Terms related to this study

Keywords Provided by Researchers

  • Blood cancer

Additional Relevant MeSH Terms

  • Leukemia
  • Lymphoma
  • Myeloma
  • Myelodysplastic Syndromes
  • Myeloproliferative Neoplasm