Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing

Description

This research is being done to develop the electronic platform Nest for young adults (ages 18-39) who have had prior cancer genetic testing. The platform will give patients and their clinicians access to continuously updated information about both pathogenic variants and variants of uncertain significance (VUS). The name of the intervention used in this research study is: Nest portal (electronic platform for patients and clinicians)

Conditions

Genetic Predisposition to Disease, Genetic Predisposition

Study Overview

Study Details

Study overview

This research is being done to develop the electronic platform Nest for young adults (ages 18-39) who have had prior cancer genetic testing. The platform will give patients and their clinicians access to continuously updated information about both pathogenic variants and variants of uncertain significance (VUS). The name of the intervention used in this research study is: Nest portal (electronic platform for patients and clinicians)

Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing

Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing

Condition
Genetic Predisposition to Disease
Intervention / Treatment

-

Contacts and Locations

Boston

Dana Farber Cancer Institute, Boston, Massachusetts, United States, 02115

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

    Ages Eligible for Study

    18 Years to 39 Years

    Sexes Eligible for Study

    ALL

    Accepts Healthy Volunteers

    Yes

    Collaborators and Investigators

    Dana-Farber Cancer Institute,

    Jennifer Mack, MD, PRINCIPAL_INVESTIGATOR, Dana-Farber Cancer Institute

    Study Record Dates

    2026-03-30