The PCOS Challenge Study

Description

The primary purpose of The PCOS Challenge Study will be to conduct high-quality research where patients are included in the design, and answering the questions that patients identify as important to their lived experience with PCOS. In partnership with clinical investigators, patients will work on the development and management of data collection, the research agenda, and the sharing of research findings. The PCOSC Study will promote the advancement of research that provides reliable, useful, and meaningful information to patients with PCOS and their clinicians. The population for The PCOS Challenge Study will include individuals with a clinical diagnosis of PCOS, individuals self-diagnosed with PCOS, individuals with symptoms of PCOS (e.g., hirsutism, irregular menstrual cycles), and demographic-matched controls without PCOS.

Conditions

Polycystic Ovary Syndrome

Study Overview

Study Details

Study overview

The primary purpose of The PCOS Challenge Study will be to conduct high-quality research where patients are included in the design, and answering the questions that patients identify as important to their lived experience with PCOS. In partnership with clinical investigators, patients will work on the development and management of data collection, the research agenda, and the sharing of research findings. The PCOSC Study will promote the advancement of research that provides reliable, useful, and meaningful information to patients with PCOS and their clinicians. The population for The PCOS Challenge Study will include individuals with a clinical diagnosis of PCOS, individuals self-diagnosed with PCOS, individuals with symptoms of PCOS (e.g., hirsutism, irregular menstrual cycles), and demographic-matched controls without PCOS.

The PCOS Challenge Study: For the Collection of Information to Advance Research and Improve Care for PCOS Patients

The PCOS Challenge Study

Condition
Polycystic Ovary Syndrome
Intervention / Treatment

-

Contacts and Locations

Bethesda

PCOS Challenge: The National Polycystic Ovary Syndrome Association, Bethesda, Maryland, United States, 20817

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Diagnosed with PCOS by a health professional, self-diagnosed with PCOS or individuals with PCOS symptoms
  • * Willing to sign the consent form
  • * Able to understand the registry surveys or what is being asked
  • * Unable to understand the surveys or what is being asked
  • * Unwilling to sign the consent form

Ages Eligible for Study

12 Years to 80 Years

Sexes Eligible for Study

FEMALE

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

PCOS Challenge: The National Polycystic Ovary Syndrome Association,

Sasha Ottey, MHA, MT (ASCP), PRINCIPAL_INVESTIGATOR, PCOS Challenge: The National Polycystic Ovary Syndrome Association

Ricardo Azziz, MD, MPH, MBA, PRINCIPAL_INVESTIGATOR, The University of Alabama at Birmingham

Study Record Dates

2042-12-31