Self-Management Program for AIS D SCI

Description

About 25-51% of adults with acquired spinal cord injury (SCI) have "AIS D" SCI, the lowest severity grade of neurologic injury. Veterans with AIS D SCI generally have better outcomes in mobility, community integration, and employment. However, counterintuitively, they are also at higher risk of poor subjective well-being (SWB) and related psychosocial outcomes. Preliminary evidence suggests that poorer SWB in this group is associated with distinctive, modifiable factors such as less intensity of acute rehabilitation services, limited development of instrumental and social support networks, and underdeveloped disability identity. A significant gap in the care of Veterans with AIS D SCI is that they are unlikely to receive rehabilitation that is responsive to their specific experiences and needs. The proposed study will develop a novel, self-management based program to help Veterans with AIS D SCI. This study is highly significant, as creation of the proposed program is expected to improve SWB and lifetime psychosocial functioning for Veterans with AIS D SCI.

Conditions

Psychological Well-Being, Spinal Cord Injuries

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Study Overview

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Study Details

Study overview

About 25-51% of adults with acquired spinal cord injury (SCI) have "AIS D" SCI, the lowest severity grade of neurologic injury. Veterans with AIS D SCI generally have better outcomes in mobility, community integration, and employment. However, counterintuitively, they are also at higher risk of poor subjective well-being (SWB) and related psychosocial outcomes. Preliminary evidence suggests that poorer SWB in this group is associated with distinctive, modifiable factors such as less intensity of acute rehabilitation services, limited development of instrumental and social support networks, and underdeveloped disability identity. A significant gap in the care of Veterans with AIS D SCI is that they are unlikely to receive rehabilitation that is responsive to their specific experiences and needs. The proposed study will develop a novel, self-management based program to help Veterans with AIS D SCI. This study is highly significant, as creation of the proposed program is expected to improve SWB and lifetime psychosocial functioning for Veterans with AIS D SCI.

A Self-Management Program for Improving the Well-Being of Veterans With AIS D Incomplete Spinal Cord Injury

Self-Management Program for AIS D SCI

Condition
Psychological Well-Being
Intervention / Treatment

-

Contacts and Locations

Richmond

Hunter Holmes McGuire VA Medical Center, Richmond, VA, Richmond, Virginia, United States, 23249-0001

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • 1. VA clinician-confirmed diagnosis of tetraplegia or paraplegia with an ASIA rating of AIS D \[Veterans with AIS D SCI\];
  • 2. Interest and ability (e.g., reliable video telehealth equipment and WiFi) to participate in the focus groups.
  • 1. Currently participating in a comprehensive, inpatient rehabilitation program;
  • 2. Diagnosis of a psychotic disorder;
  • 3. At high risk for suicidal/homicidal behavior;
  • 4. Active substance dependence;
  • 5. Lack of capacity to consent to participation;
  • 6. Any medical condition that could affect results such as advanced cancer or neurologic disease such as Parkinson's disease; and
  • 7. Mental disorders such as posttraumatic stress disorder and depressive disorder will not be exclusions, but any medications must have been stable for at least 30 days prior to enrollment.

Ages Eligible for Study

to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

VA Office of Research and Development,

Scott D McDonald, PhD, PRINCIPAL_INVESTIGATOR, Hunter Holmes McGuire VA Medical Center, Richmond, VA

Study Record Dates

2025-05-31