RECRUITING

A Checklist (Advanced Care Planning) for The Assessment of Mobility Needs in Patients With Sarcoma

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

This trial tests how well the advanced care planning around mobility needs checklist tool works to assess future mobility needs in patients with sarcoma. Gathering information about sarcoma patients that have had surgery to either save or remove a limb may help doctors learn more about a patient's mobility needs. Using an advance care planning mobility needs assessment may help improve the quality of life in patients with sarcoma by helping them plan for their future mobility needs.

Official Title

Improving Advance Care Planning Around Mobility Needs Among Patients With Sarcoma

Quick Facts

Study Start:2025-07-08
Study Completion:2025-11-30
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT05835154

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * PATIENTS: Age 18 years of age or older.
  2. * PATIENTS: English speaking
  3. * PATIENTS: Able to provide informed consent
  4. * PATIENTS: Have access to a computer or other device to fill out the online checklist
  5. * PATIENTS: Have had either limb salvage or amputation surgery for sarcoma within the last 6 months OR have metastatic (stage IV) sarcoma and are in active treatment.
  6. * CAREGIVERS: Age 18 years of age or older
  7. * CAREGIVERS: English speaking
  8. * CAREGIVERS: Able to provide informed consent
  9. * CAREGIVERS: Have access to a computer or other device to fill out the online checklist
  10. * CAREGIVERS: The person (family member or friend) whom the patient indicates being an informal caregiver
  1. Pregnancy or breastfeeding
  2. Severe psychiatric disorders
  3. Active substance abuse
  4. Unstable medical conditions
  5. Inability to comply with study requirements

Contacts and Locations

Study Contact

Megan Shen
CONTACT
206-667-4172
mshen2@fredhutch.org

Principal Investigator

Megan Shen
PRINCIPAL_INVESTIGATOR
Fred Hutch/University of Washington Cancer Consortium

Study Locations (Sites)

Fred Hutch/University of Washington Cancer Consortium
Seattle, Washington, 98109
United States

Collaborators and Investigators

Sponsor: Fred Hutchinson Cancer Center

  • Megan Shen, PRINCIPAL_INVESTIGATOR, Fred Hutch/University of Washington Cancer Consortium

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2025-07-08
Study Completion Date2025-11-30

Study Record Updates

Study Start Date2025-07-08
Study Completion Date2025-11-30

Terms related to this study

Additional Relevant MeSH Terms

  • Metastatic Sarcoma
  • Sarcoma