COMPLETED

Speech Accessibility Project

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The goal of the Speech Accessibility Project at the University of Illinois Beckman Institute (https://speechaccessibilityproject.beckman.illinois.edu) is to collect, annotate, and curate a shared database of speech samples from people with atypical speech, and share this data set with researchers at other organizations. This two-year project plans to collect 1,200,000 speech samples from 2,000 people, each of whom will provide 600 samples. In Year 1, the initial focus will be people with Parkinson's. In Year 2, four more etiologies of interest will be recruited: Amyotrophic Lateral Sclerosis (ALS), Cerebral Palsy (CP), Down Syndrome (DS), and Stroke. UIUC will build an open-source software infrastructure to collect annotated speech samples and share these data in an appropriately secure fashion with researchers from our partner technology companies (and eventually, other organizations as well) so that they can use these data to improve their automatic speech recognition algorithms. This project promotes diversity, equity, and inclusion by helping technology companies to fully support all types of speech, and it is also more efficient and less burdensome for these specialized patient populations to have one centralized "collector" of speech samples.

Official Title

People With Speech Disabilities Contributing Speech Samples for Improved Accessibility of Speech-Enabled Devices

Quick Facts

Study Start:2023-03-15
Study Completion:2025-07-31
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:COMPLETED

Study ID

NCT05889260

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Adult (age \>= 18 years)
  2. * Self-reported diagnosis of Parkinson's Disease, ALS, CP, DS, or Stroke
  3. * Reads and speaks English in the form of complete sentences
  4. * Has a valid email address
  5. * Ability to access web browser to participate in study
  1. * Is a resident of the State of Washington, Texas, or Illinois (because these states have privacy laws that would not allow us to collect 'voice prints')
  2. * If quality control screening of initial speech samples "fails" because of poor data quality (e.g., poor quality recording environment, or person's speech is "too typical" and not sufficiently interesting to continue collecting)

Contacts and Locations

Principal Investigator

Mark A Hasegawa-Johnson, Ph.D.
PRINCIPAL_INVESTIGATOR
University of Illinois at Urbana-Champaign

Study Locations (Sites)

LSVT Global
Denver, Colorado, 80204
United States
University of Illinois at Urbana-Champaign
Urbana, Illinois, 61801
United States

Collaborators and Investigators

Sponsor: University of Illinois at Urbana-Champaign

  • Mark A Hasegawa-Johnson, Ph.D., PRINCIPAL_INVESTIGATOR, University of Illinois at Urbana-Champaign

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2023-03-15
Study Completion Date2025-07-31

Study Record Updates

Study Start Date2023-03-15
Study Completion Date2025-07-31

Terms related to this study

Additional Relevant MeSH Terms

  • Parkinson Disease
  • Progressive Supranuclear Palsy
  • Multiple System Atrophy
  • Dementia With Lewy Bodies