African Americans (AA) Communities Speak

Description

African Americans are less likely to receive quality end-of-life (EoL) care. Addressing disparities in EoL care will need efforts to support a better understanding of African American patients' EoL cultural values and preferences for EoL communication and the impact of historical and ongoing care delivery inequities in healthcare settings. Our proposed "Caring for Older African Americans" training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and an implicit bias recognition and management training to mitigate bias in goals of care communication.

Conditions

Healthy Aging, Health Knowledge, Attitudes, Practice, Social Responsibility, Care Eliciting Behavior, Racism, Systemic

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Study Overview

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Study Details

Study overview

African Americans are less likely to receive quality end-of-life (EoL) care. Addressing disparities in EoL care will need efforts to support a better understanding of African American patients' EoL cultural values and preferences for EoL communication and the impact of historical and ongoing care delivery inequities in healthcare settings. Our proposed "Caring for Older African Americans" training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and an implicit bias recognition and management training to mitigate bias in goals of care communication.

African Americans (AA) Communities Speak: Partnering With AA in the North and South to Train Palliative Care Clinicians to Address Interpersonal and Systemic Racism and Provide Culturally Aligned Care.

African Americans (AA) Communities Speak

Condition
Healthy Aging
Intervention / Treatment

-

Contacts and Locations

Birmingham

UAB, Birmingham, Alabama, United States, 35233

Birmingham

University of Alabama at Birmingham, Birmingham, Alabama, United States, 35233

Bronx

Albert Einstein/Montefiore, Bronx, New York, United States, 10461

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Self-identified as African American (i.e., born, raised, and lived primarily in the US)
  • * Non-Hispanic or Latino
  • * Age ≥60 years
  • * English-speaking
  • * Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
  • * Callahan Six-Item Screener score ≥4
  • * Able to complete baseline surveys.
  • * Self-identified as African American (i.e., born, raised, and lived primarily in the US)
  • * Non-Hispanic or Latino
  • * Age ≥60 years
  • * English-speaking
  • * Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
  • * Callahan Six-Item Screener score ≥4
  • * Able to complete baseline surveys.
  • * Self-identified as African American (i.e., born, raised, and lived primarily in the US)
  • * Non-Hispanic or Latino, 3. age ≥60 years
  • * English-speaking
  • * Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
  • * Callahan Six-Item Screener score ≥4
  • * Able to complete baseline surveys.
  • * Age ≥ 18 years
  • * English-speaking
  • * Community-dwelling
  • * Unpaid care provider of a person with a serious illness.

Ages Eligible for Study

to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

University of Alabama at Birmingham,

Jennifer Tjia, MD, MSCE, PRINCIPAL_INVESTIGATOR, University of Massachusetts, Worcester

Study Record Dates

2028-07