RECRUITING

African Americans (AA) Communities Speak

Conditions

Healthy Aging Health Knowledge, Attitudes, Practice Social Responsibility Care Eliciting Behavior Racism, Systemic goal concordant care older African American CBPR end-of-life

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Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

African Americans are less likely to receive quality end-of-life (EoL) care. Addressing disparities in EoL care will need efforts to support a better understanding of African American patients' EoL cultural values and preferences for EoL communication and the impact of historical and ongoing care delivery inequities in healthcare settings. Our proposed "Caring for Older African Americans" training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and an implicit bias recognition and management training to mitigate bias in goals of care communication.

Official Title

African Americans (AA) Communities Speak: Partnering With AA in the North and South to Train Palliative Care Clinicians to Address Interpersonal and Systemic Racism and Provide Culturally Aligned Care.

Quick Facts

Study Start:2025-02-27

Study Completion:2028-07

Study Type:Not specified

Phase:Not Applicable

Enrollment:Not specified

Status:RECRUITING

Study ID

NCT05908487

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified

Sexes Eligible for Study:ALL

Accepts Healthy Volunteers:Yes

Standard Ages:CHILD, ADULT, OLDER_ADULT

Inclusion Criteria	Exclusion Criteria
* Self-identified as African American (i.e., born, raised, and lived primarily in the US) * Non-Hispanic or Latino * Age ≥60 years * English-speaking * Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease) * Callahan Six-Item Screener score ≥4 * Able to complete baseline surveys. * Self-identified as African American (i.e., born, raised, and lived primarily in the US) * Non-Hispanic or Latino * Age ≥60 years * English-speaking * Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease) * Callahan Six-Item Screener score ≥4 * Able to complete baseline surveys.	* Self-identified as African American (i.e., born, raised, and lived primarily in the US) * Non-Hispanic or Latino, 3. age ≥60 years * English-speaking * Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease) * Callahan Six-Item Screener score ≥4 * Able to complete baseline surveys. * Age ≥ 18 years * English-speaking * Community-dwelling * Unpaid care provider of a person with a serious illness.

Inclusion Criteria

Exclusion Criteria

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age ≥60 years
* English-speaking
* Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.
* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age ≥60 years
* English-speaking
* Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino, 3. age ≥60 years
* English-speaking
* Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.
* Age ≥ 18 years
* English-speaking
* Community-dwelling
* Unpaid care provider of a person with a serious illness.

Contacts and Locations

Study Contact

Ronit Elk, PhD

CONTACT

205.996.1702

relk@uabmc.edu

Tametria V Heard, PhD

CONTACT

205.934.7905

tvheard@uabmc.edu

Principal Investigator

Jennifer Tjia, MD, MSCE

PRINCIPAL_INVESTIGATOR

University of Massachusetts, Worcester

Study Locations (Sites)

UAB

Birmingham, Alabama, 35233

United States

University of Alabama at Birmingham

Birmingham, Alabama, 35233

United States

Albert Einstein/Montefiore

Bronx, New York, 10461

United States

Collaborators and Investigators

Sponsor: University of Alabama at Birmingham

Jennifer Tjia, MD, MSCE, PRINCIPAL_INVESTIGATOR, University of Massachusetts, Worcester

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2025-02-27

Study Completion Date2028-07

Study Record Updates

Study Start Date2025-02-27

Study Completion Date2028-07

Terms related to this study

Keywords Provided by Researchers

goal concordant care older African American CBPR end-of-life

Additional Relevant MeSH Terms

Healthy Aging
Health Knowledge, Attitudes, Practice
Social Responsibility
Care Eliciting Behavior
Racism, Systemic