LEADing Dementia End-of-Life Planning Conversations

Description

Advance care planning is important for all adults, but perhaps even more so for the 5.7 million persons with Alzheimer's disease or related dementia (ADRD), due to the progressive and protracted cognitive deterioration associated with the disease process. In the context of ADRD, medical decision-making at the end of life is typically left to one's care partner, who often does not have the knowledge or confidence in their ability to make such decisions. This study will refine and evaluate a web-based platform, called the LEAD Intervention (Life-Planning in Early Alzheimer's and other Dementias), which is designed to help persons in the preclinical or early stage of ADRD engage in conversations about, document, and share their end-of-life values and preferences with a care partner, extended family members, and health care providers.

Conditions

Alzheimer Disease, Mild Cognitive Impairment

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Study Overview

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Study Details

Study overview

Advance care planning is important for all adults, but perhaps even more so for the 5.7 million persons with Alzheimer's disease or related dementia (ADRD), due to the progressive and protracted cognitive deterioration associated with the disease process. In the context of ADRD, medical decision-making at the end of life is typically left to one's care partner, who often does not have the knowledge or confidence in their ability to make such decisions. This study will refine and evaluate a web-based platform, called the LEAD Intervention (Life-Planning in Early Alzheimer's and other Dementias), which is designed to help persons in the preclinical or early stage of ADRD engage in conversations about, document, and share their end-of-life values and preferences with a care partner, extended family members, and health care providers.

LEADing Dementia End-of-Life Planning Conversations

LEADing Dementia End-of-Life Planning Conversations

Condition
Alzheimer Disease
Intervention / Treatment

-

Contacts and Locations

Salt Lake City

University of Utah College of Nursing, Salt Lake City, Utah, United States, 84112

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Care Recipient (CR) is age 50+
  • * CR Is interested in having conversations about and documenting wishes for future end-of-life care
  • * CR has noticed changes in memory or thinking skills indicative of preclinical or early stage of AD, OR
  • * CR has been diagnosed with mild cognitive impairment, Alzheimer's disease, or another type of dementia and in the preclinical or early stage
  • * Care Partner (CP) is age 18+
  • * CP is a Spouse/partner, family member, or close friend of CR
  • * Has moderate to severe symptoms of dementia

Ages Eligible for Study

18 Years to 100 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

University of Utah,

Kara Dassel, PhD, PRINCIPAL_INVESTIGATOR, University of Utah

Study Record Dates

2027-06-30