Synovial Sarcoma Registry / Biospecimen Repository

Description

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.

Conditions

Synovial Sarcoma

Study Overview

Study Details

Study overview

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.

Synovial Sarcoma Registry and Biospecimen Repository

Synovial Sarcoma Registry / Biospecimen Repository

Condition
Synovial Sarcoma
Intervention / Treatment

-

Contacts and Locations

Philadelphia

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States, 19104

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • 1. Males or females of any age
  • 2. Reported diagnosis of synovial sarcoma
  • 3. Informed consent from subject (aged ≥18 years) or parent/guardian
  • 1. Individuals with sarcomas that do not fit the definition of those considered for this registry
  • 2. Individuals who are unwilling to participate
  • 3. Individuals who are unwilling or unable to provide written consent

Ages Eligible for Study

to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Children's Hospital of Philadelphia,

Theodore Laetsch, MD, PRINCIPAL_INVESTIGATOR, Children's Hospital of Philadelphia

Study Record Dates

2033-06