Lupus Landmark Study: A Prospective Registry and Biorepository

Description

The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).

Conditions

Systemic Lupus Erythematosus (SLE), Lupus Nephritis, Neuropsychiatric Systemic Lupus Erythematosus

Study Overview

Study Details

Study overview

The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).

Lupus Nexus Landmark Study: A Prospective Registry and Biorepository

Lupus Landmark Study: A Prospective Registry and Biorepository

Condition
Systemic Lupus Erythematosus (SLE)
Intervention / Treatment

-

Contacts and Locations

Birmingham

University of Alabama at Birmingham, Birmingham, Alabama, United States, 35205

Los Angeles

Wallace Rheumatic Studies Center, Los Angeles, California, United States, 90048

Atlanta

Emory University, Atlanta, Georgia, United States, 30322

Chicago

University of Chicago Medicine, Chicago, Illinois, United States, 60637

Worcester

University of Massachusetts Memorial Health, Worcester, Massachusetts, United States, 01605

New York

Northwell Health, New York, New York, United States, 11021

Syracuse

SUNY Upstate, Syracuse, New York, United States, 13210

Chapel Hill

UNC Chapel Hill, Chapel Hill, North Carolina, United States, 27599

Dallas

UT Southwestern Medical Center, Dallas, Texas, United States, 75390

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Able to understand and comply with study procedures and voluntarily sign a written informed consent document
  • * Age 18 years or older at the time of enrollment
  • * Fulfill criteria for SLE based on one or more of the following classifications systems:
  • * Not able to obtain consent
  • * Not able to meet protocol visit requirements
  • * Pregnant at the time of enrollment

Ages Eligible for Study

18 Years to 110 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Lupus Research Alliance,

Sam Lim, MD, MPH, PRINCIPAL_INVESTIGATOR, Emory University

Arezou Khosroshahi, MD, PRINCIPAL_INVESTIGATOR, Emory University

Alfred Kim, MD, PhD, PRINCIPAL_INVESTIGATOR, Washington University School of Medicine

Study Record Dates

2033-12