Data Collection Protocol for Patients With Von Hippel Lindau Disease

Description

To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.

Conditions

Von Hippel Lindau Disease

Study Overview

Study Details

Study overview

To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.

Data Collection Protocol for Patients With Von Hippel Lindau Disease

Data Collection Protocol for Patients With Von Hippel Lindau Disease

Condition
Von Hippel Lindau Disease
Intervention / Treatment

-

Contacts and Locations

Houston

M D Anderson Cancer Center, Houston, Texas, United States, 77030

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Presence of genetic confirmation or clinical criteria consistent with vHL disease.
  • * Ability to understand and the willingness to sign a written informed consent document.

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

M.D. Anderson Cancer Center,

Eric Jonasch, MD, PRINCIPAL_INVESTIGATOR, ejonasch@mdanderson.org

Study Record Dates

2026-12-31