ACTIVE_NOT_RECRUITING

A Randomized, Double-blind 2-arm NEPTUNUS Extension Study to Assess the Long-term Safety and Efficacy of Ianalumab in Patients With Sjogrens Syndrome.

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this study is to measure the long-term safety and tolerability of ianalumab in participants with Sjogrens syndrome who have previously completed treatment from one of two NEPTUNUS 1 year core studies (CVAY736A2301 \[NCT05350072\] or CVAY736A2302 \[NCT05349214\]). * The study treatment is ianalumab 300 mg in a 2 mL pre-filled syringe (PFS) or in a 2 mL autoinjector (AI) for injection. All participants will receive ianalumab either monthly or every 3 months. * The treatment duration will be 3 years with an additional up to 2-year safety follow-up. The total duration of this extension study will be up to 5 years. * The visit frequency will be monthly during both the treatment period and mandatory follow-up, and then less frequently during the subsequent conditional follow-up. Treatment of interest: The randomized treatment (ianalumab) will be received monthly or every 3 months. Participants assigned to treatment every 3 months will receive placebo every month between the ianalumab doses to maintain blinding. Number of Participants: Approximately 600 participants from the NEPTUNUS core studies will be rolled over into the extension study. Treatment Groups:There will be no screening period in this trial. From Week 48 of the NEPTUNUS core study, participants will be given the opportunity to consent to this extension study. From Week 52 of the NEPTUNUS core studies (i.e., Day 1 in the extension study), eligible participants will be assigned to either one of the treatment regimens: * ianalumab 300 mg monthly or * ianalumab 300 mg once every 3 months Participants receiving placebo in either of the NEPTUNUS core studies will be randomized 1:1 to receive ianalumab 300 mg monthly or every 3 months starting from Week 60 and participants receiving ianalumab in either of the NEPTUNUS core studies will continue the same treatment in the extension study. Ianalumab will be given as a subcutaneous injection from a 2 mL pre-filled syringe or a 2 mL autoinjector. Participants will be given the opportunity to self-inject at home on some visits after receiving training.

Official Title

A Randomized, Double-blind 2-arm NEPTUNUS Extension Study to Assess the Long-term Safety and Efficacy of Ianalumab in Patients With Sjogrens Syndrome.

Quick Facts

Study Start:2023-10-27
Study Completion:2030-07-18
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:ACTIVE_NOT_RECRUITING

Study ID

NCT05985915

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years to 75 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. 1. Signed informed consent prior to participation in the extension study.
  2. 2. Participants must have participated in either one of the two NEPTUNUS core studies, CVAY736A2301 or CVAY736A2302, and must have completed the entire treatment up to Week 48 without treatment discontinuation in core NEPTUNUS studies.
  3. 3. In the judgement of the Investigator, participants must be expected to clinically benefit from continued ianalumab therapy.
  1. 1. Use of therapies excluded by the NEPTUNUS-1 and NEPTUNUS-2 study protocols (see NEPTUNUS studies protocols exclusion criteria in Section 5.2 for details).
  2. 2. Plans for administration of live vaccines during the study period.
  3. 3. Pregnant or nursing (lactating) women, where pregnancy is defined as the state of a female after conception and until the termination of gestation, confirmed by a positive human Chorionic Gonadotropin (hCG) laboratory test.
  4. 4. Women of child-bearing potential (WOCBP), defined as all women physiologically capable of becoming pregnant, unless they are using highly effective methods of contraception while taking study treatment during dosing and for 6 months after stopping of investigational drug. Highly effective contraception methods include:
  5. * Total abstinence (when this is in line with the preferred and usual lifestyle of the participant. Periodic abstinence (e.g., calendar, ovulation, symptothermal, post-ovulation methods) and withdrawal are not acceptable methods of contraception.
  6. * Female bilateral tubal ligation, female sterilization (have had surgical bilateral oophorectomy with or without hysterectomy) or total hysterectomy at least six weeks before taking study treatment. In case of oophorectomy alone, only when the reproductive status of the woman has been confirmed by follow up hormone level assessment.
  7. * Male sterilization (at least 6 months prior to screening). For female participants on the study, the vasectomized male partner should be the sole partner for that participant.
  8. * Use of oral (estrogen and progesterone), injected, or implanted hormonal methods of contraception or placement of an intrauterine device (IUD) or intrauterine system (IUS), or other forms of hormonal contraception that have comparable efficacy (failure rate \< 1%), for example hormone vaginal ring or transdermal hormone contraception.
  9. 5. United States (and other countries, if male contraception is locally required): Sexually active males, unless they agree to use barrier protection during intercourse with a woman of child-bearing potential, while taking study treatment. As condom use alone has a reported failure rate exceeding 1% per year, it is recommended that female partners of male study participants use a second method of birth control. Although ianalumab is not teratogenic and/or genotoxic, and not transferred to semen, male contraception is required, as requested by FDA.

Contacts and Locations

Principal Investigator

Novartis Pharmaceuticals
STUDY_DIRECTOR
Novartis Pharmaceuticals

Study Locations (Sites)

Providence Medical Foundation
Fullerton, California, 92835
United States
Advanced Medical Research
La Palma, California, 90623
United States
Medvin Clinical Research
Van Nuys, California, 91405
United States
Bay Area Arthritis And Osteoporosis
Brandon, Florida, 33511
United States
GNP Research
Cooper City, Florida, 33024
United States
Sarasota Arthritis Res Ctr
Sarasota, Florida, 34239
United States
West Broward Rheumatology Associates Inc
Tamarac, Florida, 33321
United States
Augusta University Georgia
Augusta, Georgia, 30912
United States
North GA Rheumatology Group PC
Suwanee, Georgia, 30024
United States
Clin Invest Specialists Inc
Orland Park, Illinois, 60467
United States
University of Kansas Hospital
Kansas City, Kansas, 66160
United States
Ochsner Health System
Baton Rouge, Louisiana, 70809
United States
The John Hopkins Jerome L Greene Sjogren
Baltimore, Maryland, 21224
United States
Tufts School of Dental Medicine
Boston, Massachusetts, 02111
United States
Arthritis Osteoporosis Assoc of NM
Las Cruces, New Mexico, 88011
United States
Winthrop University Hospital
Mineola, New York, 11501
United States
St Lawrence Health System
Potsdam, New York, 13676
United States
On Site Clinical Solutions Llc
Charlotte, North Carolina, 28202
United States
Arthritis and Osteoporosis
Charlotte, North Carolina, 28207
United States
STAT Research Inc
Dayton, Ohio, 45402
United States
RAO Research LLS
Oklahoma City, Oklahoma, 73116
United States
Altoona Center for Clin Res
Duncansville, Pennsylvania, 16635
United States
West Tennessee Research Institute
Jackson, Tennessee, 38305
United States
Shelby Research LLC
Memphis, Tennessee, 38119
United States
Precision Comprehensive Research
Colleyville, Texas, 76034
United States
Baylor College Of Medicine
Houston, Texas, 77030
United States
Prolato Clinical Research Center
Houston, Texas, 77054
United States
Houston Rheumatology & Arthrit
Katy, Texas, 77494
United States
First Outpatient Research Unit
San Antonio, Texas, 78229
United States
Advanced Rheumatology of Houston
Spring, Texas, 77382
United States
Arthritis Northwest PLLC
Spokane, Washington, 99204
United States

Collaborators and Investigators

Sponsor: Novartis Pharmaceuticals

  • Novartis Pharmaceuticals, STUDY_DIRECTOR, Novartis Pharmaceuticals

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2023-10-27
Study Completion Date2030-07-18

Study Record Updates

Study Start Date2023-10-27
Study Completion Date2030-07-18

Terms related to this study

Keywords Provided by Researchers

  • Sjogrens Syndrome
  • ianalumab
  • VAY736
  • NEPTUNUS

Additional Relevant MeSH Terms

  • Sjogrens Syndrome