SMYLS Multi-site Trial

Description

The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.

Conditions

Sickle Cell Disease

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Study Overview

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Study Details

Study overview

The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.

Self-Management for Youth Living With Sickle Cell Disease: SMYLS Multi-site Trial

SMYLS Multi-site Trial

Condition
Sickle Cell Disease
Intervention / Treatment

-

Contacts and Locations

Charleston

Medical University of South Carolina, Charleston, South Carolina, United States, 29425

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * documentation in the electronic health record of any type of SCD
  • * owns mobile device compatible with the intervention
  • * access to the internet
  • * Plans to relocate outside of study site area in the next 12 months
  • * Plans to transition to adult care in 12 months or less
  • * Parent/caregiver or provider report of neurocognitive impairment that precludes ability to use intervention and participate in study
  • * non-English speaking

Ages Eligible for Study

14 Years to 21 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

Medical University of South Carolina,

Study Record Dates

2028-01-31