Achieving Understanding of the Natural History of Sickle Cell Trait (AUNT)

Description

The main purpose of this study is to create a longitudinal cohort of those with Sickle Cell Trait (SCT) to better understand the hematologic phenotype for those that carry HbS, assess for differences in those with varying quantities of HbS and assess for potential clinical complications of SCT.

Conditions

Sickle Cell Trait

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Study Overview

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Study Details

Study overview

The main purpose of this study is to create a longitudinal cohort of those with Sickle Cell Trait (SCT) to better understand the hematologic phenotype for those that carry HbS, assess for differences in those with varying quantities of HbS and assess for potential clinical complications of SCT.

Achieving Understanding of the Natural History of Sickle Cell Trait (AUNT)

Achieving Understanding of the Natural History of Sickle Cell Trait (AUNT)

Condition
Sickle Cell Trait
Intervention / Treatment

-

Contacts and Locations

Birmingham

University of Alabama, Birmingham, Alabama, United States, 35294

Loma Linda

Loma Linda University Health Care, Loma Linda, California, United States, 92354

Wilmington

Nemours Children's Hospital, Wilmington, Delaware, United States, 19803

Indianapolis

Indiana University, Indianapolis, Indiana, United States, 46202

Baltimore

Johns Hopkins University, Baltimore, Maryland, United States, 21224

Chapel Hill

University of North Carolina, Chapel Hill, North Carolina, United States, 27599

Durham

Duke University, Durham, North Carolina, United States, 27710

Greenville

East Carolina University, Greenville, North Carolina, United States, 27834

Columbus

Nationwide Children's Hospital, Columbus, Ohio, United States, 43205

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • 1. Are willing to voluntarily participate and sign the study consent
  • 2. Know/suspect they have SCT and are willing to get tested to confirm/learn about their SCT status
  • 3. Be willing and able to participate in the 2- year study plan.
  • 4. Adults ages 18-65
  • 1. Unwilling to sign consent
  • 2. Known end-stage renal disease or dialysis
  • 3. Known SCD (including sickle cell-beta thalassemia)
  • 4. People who do not have SCT

Ages Eligible for Study

18 Years to 65 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

National Alliance for Sickle Cell Centers,

Julie Kanter, MD, PRINCIPAL_INVESTIGATOR, National Alliance for Sickle Cell Centers

Study Record Dates

2025-04