Patient-Reported Outcomes and Quality of Life in Adult and Pediatric Patients With Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL)

Study overview

There is a pressing need to measure patient-reported symptoms in patients of all ages diagnosed with nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL). This study aims to measure longitudinal symptom burden and treatment tolerability utilizing validated patient-reported outcomes (PROs) instruments. Primary Objective: * To develop the data collection infrastructure required to prospectively collect longitudinal electronic patient-reported outcomes (PROs) survey instruments in adult and pediatric patients diagnosed with NLPHL. Secondary Objective: * To examine differences in baseline and longitudinal changes in PROs based on disease characteristics, disease status, and treatment strategies among adult and pediatric patients diagnosed with NLPHL.

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

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Collaborators and Investigators

St. Jude Children's Research Hospital,

Valerie Crabtree, PhD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

Ajay Major, MD, MS, PRINCIPAL_INVESTIGATOR, University of Colorado, Denver

Anna Jones, PhD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

Matthew Rees, MD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

Jamie Flerlage, MD, MS, PRINCIPAL_INVESTIGATOR, University of Rochester

Study Record Dates

2028-01-31