Parents Reflecting On Hope During Hospice Through Photovoice

Description

In this study, researchers will use Photovoice to learn about how bereaved parents felt and thought about hope when their children were on hospice. 'Photovoice' is a research method that uses participants' photographs as a springboard for discussion. Primary Objective * To explore reflections, emotions, and experiences evoked in bereaved parents when reviewing photographs from their child's time on hospice, with photos selected by parents based on a prompt related to their thoughts about hope during that time.

Conditions

Bereavement

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Study Overview

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Study Details

Study overview

In this study, researchers will use Photovoice to learn about how bereaved parents felt and thought about hope when their children were on hospice. 'Photovoice' is a research method that uses participants' photographs as a springboard for discussion. Primary Objective * To explore reflections, emotions, and experiences evoked in bereaved parents when reviewing photographs from their child's time on hospice, with photos selected by parents based on a prompt related to their thoughts about hope during that time.

Pictures Of Hope: Parents Reflecting On Hope During Hospice Through Photovoice

Parents Reflecting On Hope During Hospice Through Photovoice

Condition
Bereavement
Intervention / Treatment

-

Contacts and Locations

Memphis

St. Jude Children's Research Hospital, Memphis, Tennessee, United States, 38105

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Participants must be the parent of a child who:
  • * Received any form of care from a clinician at St. Jude, as documented in the electronic medical record, AND
  • * Was enrolled on hospice at the time of death, AND
  • * Died at least 6 months prior to enrollment, but no more than 24 months prior to enrollment.
  • * Participants must also:
  • * Be ≥ 18 years of age or legally emancipated, AND
  • * Be English-speaking or Spanish-speaking.
  • * Insufficient comfort or fluency with either English or Spanish language.

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

St. Jude Children's Research Hospital,

Alexandra Superdock, MD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

Study Record Dates

2025-10