COMPLETED

Parents Reflecting On Hope During Hospice Through Photovoice

Conditions

Bereavement Photovoice Bereaved parent Hospice

Quick Navigation

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

In this study, researchers will use Photovoice to learn about how bereaved parents felt and thought about hope when their children were on hospice. 'Photovoice' is a research method that uses participants' photographs as a springboard for discussion. Primary Objective * To explore reflections, emotions, and experiences evoked in bereaved parents when reviewing photographs from their child's time on hospice, with photos selected by parents based on a prompt related to their thoughts about hope during that time.

Official Title

Pictures Of Hope: Parents Reflecting On Hope During Hospice Through Photovoice

Quick Facts

Study Start:2024-01-30

Study Completion:2025-10-27

Study Type:Not specified

Phase:Not Applicable

Enrollment:Not specified

Status:COMPLETED

Study ID

NCT06187636

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years

Sexes Eligible for Study:ALL

Accepts Healthy Volunteers:Not specified

Standard Ages:ADULT, OLDER_ADULT

Inclusion Criteria	Exclusion Criteria
* Participants must be the parent of a child who: * Received any form of care from a clinician at St. Jude, as documented in the electronic medical record, AND * Was enrolled on hospice at the time of death, AND * Died at least 6 months prior to enrollment, but no more than 24 months prior to enrollment. * Participants must also: * Be ≥ 18 years of age or legally emancipated, AND * Be English-speaking or Spanish-speaking.	* Insufficient comfort or fluency with either English or Spanish language.

Inclusion Criteria

Exclusion Criteria

* Participants must be the parent of a child who:
* Received any form of care from a clinician at St. Jude, as documented in the electronic medical record, AND
* Was enrolled on hospice at the time of death, AND
* Died at least 6 months prior to enrollment, but no more than 24 months prior to enrollment.
* Participants must also:
* Be ≥ 18 years of age or legally emancipated, AND
* Be English-speaking or Spanish-speaking.

* Insufficient comfort or fluency with either English or Spanish language.

Contacts and Locations

Principal Investigator

Alexandra Superdock, MD

PRINCIPAL_INVESTIGATOR

St. Jude Children's Research Hospital

Study Locations (Sites)

St. Jude Children's Research Hospital

Memphis, Tennessee, 38105

United States

Collaborators and Investigators

Sponsor: St. Jude Children's Research Hospital

Alexandra Superdock, MD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2024-01-30

Study Completion Date2025-10-27

Study Record Updates

Study Start Date2024-01-30

Study Completion Date2025-10-27

Terms related to this study

Keywords Provided by Researchers

Photovoice
Bereaved parent
Hospice

Additional Relevant MeSH Terms

Bereavement