Implementing a Novel Consent Process for Biospecimen Research After Newborn Screening

Description

The purpose of this study is to implement an electronic consent education process for the retention and research use of residual dried bloodspots at four hospitals in Michigan and assess the impact of the new education, both on patients and hospital staff. The research team will recruit women who have just given birth to answer surveys about the Michigan BioTrust consent process. Surveys will be collected from participants in the hospital and again four weeks later. The research team will collect survey data from patient participants at each hospital prior to hospital staff implementation of the new education process and again after staff implementation.

Conditions

Implementation Science, Informed Consent, Neonatal Screening

Study Overview

Study Details

Study overview

The purpose of this study is to implement an electronic consent education process for the retention and research use of residual dried bloodspots at four hospitals in Michigan and assess the impact of the new education, both on patients and hospital staff. The research team will recruit women who have just given birth to answer surveys about the Michigan BioTrust consent process. Surveys will be collected from participants in the hospital and again four weeks later. The research team will collect survey data from patient participants at each hospital prior to hospital staff implementation of the new education process and again after staff implementation.

Implementing a Novel Consent Process for Biospecimen Research After Newborn Screening in Hospitals Serving Diverse Patients

Implementing a Novel Consent Process for Biospecimen Research After Newborn Screening

Condition
Implementation Science
Intervention / Treatment

-

Contacts and Locations

Salt Lake City

University of Utah Hospital and Clinics, Salt Lake City, Utah, United States, 84132

Salt Lake City

University of Utah, Department of Obstetrics & Gynecology, Salt Lake City, Utah, United States, 84132

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Adult (\> 18 years)
  • * English, Spanish or Arabic speaking
  • * Just gave birth and currently a patient in the Mother \& Baby Unit in the hospital
  • * Parents of infants who are born pre-term (\< 37 weeks gestation)
  • * Parents of infants in the Neonatal Intensive Care Unit
  • * Parents of infants being put up for adoption or in situations where legal guardianship is unknown at the time of birth

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

Erin Rothwell,

Erin Rothwell, MD, PRINCIPAL_INVESTIGATOR, University of Utah

Study Record Dates

2028-01-30