Improving Social Relationships for Adolescents With Central Disorders of Hypersomnolence

Description

The goal of this study is to test a web-based psychoeducational resource for adolescents with central disorders of hypersomnolence and their families. The investigators hope to assess the website's usability, acceptability, and feasibility, as well as its potential effect on social relationship health. Participants will be asked to review the content of the psychoeducational websites. The participants will then provide feedback on the website, as well as the adolescent's social relationships and social health before and after reviewing the website through online surveys.

Conditions

Narcolepsy Type 1, Narcolepsy Type 2, Idiopathic Hypersomnia

Study Overview

Study Details

Study overview

The goal of this study is to test a web-based psychoeducational resource for adolescents with central disorders of hypersomnolence and their families. The investigators hope to assess the website's usability, acceptability, and feasibility, as well as its potential effect on social relationship health. Participants will be asked to review the content of the psychoeducational websites. The participants will then provide feedback on the website, as well as the adolescent's social relationships and social health before and after reviewing the website through online surveys.

Improving Social Relationships for Adolescents With Central Disorders of Hypersomnolence

Improving Social Relationships for Adolescents With Central Disorders of Hypersomnolence

Condition
Narcolepsy Type 1
Intervention / Treatment

-

Contacts and Locations

Boston

Boston Children's Hospital, Boston, Massachusetts, United States, 02115

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Adolescent from 10-17 years of age and parent of the adolescent
  • * Adolescent has physician-diagnosed narcolepsy type 1 or type 2, or idiopathic hypersomnia
  • * English fluency
  • * Interest in learning more about how to improve social health for adolescents with a CDH

Ages Eligible for Study

10 Years to 17 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Boston Children's Hospital,

Eric Zhou, PhD, PRINCIPAL_INVESTIGATOR, Boston Children's Hospital

Study Record Dates

2025-05-01