Targeted Navigation in Hepatocellular Carcinoma (HCC)

Description

The investigators are trying to learn more about the personal perceptions and experiences regarding the needs of patients with liver cancer to help improve the care of all patients. The investigators would like to know whether there are needs that patients have or are aware of, especially those needs that the investigators have not been able to address. The investigators aim to develop a program that helps participants and participant's families to navigate the process of being diagnosed with liver cancer and receiving treatment.

Conditions

Hepatocellular Carcinoma, Cholangiocarcinoma, Hepatobiliary Cancer

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Study Overview

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Study Details

Study overview

The investigators are trying to learn more about the personal perceptions and experiences regarding the needs of patients with liver cancer to help improve the care of all patients. The investigators would like to know whether there are needs that patients have or are aware of, especially those needs that the investigators have not been able to address. The investigators aim to develop a program that helps participants and participant's families to navigate the process of being diagnosed with liver cancer and receiving treatment.

Targeted Navigation to Achieve Health Equity: Increasing Access to Care, Patient Engagement and Research Participation

Targeted Navigation in Hepatocellular Carcinoma (HCC)

Condition
Hepatocellular Carcinoma
Intervention / Treatment

-

Contacts and Locations

Miami

University of Miami, Miami, Florida, United States, 33136

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * HCC Patients:
  • * Enrolled or eligible for enrollment in Unified Prospective Registry and Biorepository of Patients with Chronic Liver Disease or Hepatobiliary Cancers Including Hepatocellular Carcinoma (HCC) and Cholangiocarcinoma.
  • * Diagnosis of hepatocellular carcinoma, confirmed by clinical chart review and International Classification of Diseases, Tenth Revision (ICD-10) C22.0.
  • * Adults, age 18 or older
  • * Able to provide informed consent
  • * All other interviewees:
  • * Advocates who will self-identify as having had HCC.
  • * Others who self-identify as either a caregiver or support person of an HCC patient.
  • * Unable to speak Spanish or English
  • * West Haven Grade 2 or higher hepatic encephalopathy19 or other cognitive impairment.
  • * Adults unable or unwilling to consent
  • * Individuals who are not yet adults (infants, children, teenagers)
  • * Prisoners
  • * Given that this study is minimal risk and there are no risks to a potential fetus, investigators will not exclude pregnant women; however, no data about pregnancy or their fetus is being collected

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

University of Miami,

Patricia Jones, MD, PRINCIPAL_INVESTIGATOR, University of Miami

Study Record Dates

2026-10-31