The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The Learning Health System" and "Epilepsy Across the Spectrum: Promoting Health and Understanding". The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care.
Epilepsy, Seizure Disorder, Neurologic Disorder, Rare Diseases
The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The Learning Health System" and "Epilepsy Across the Spectrum: Promoting Health and Understanding". The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care.
Epilepsy Learning Healthcare System (ELHS)
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Barrow Neurological Institute Comprehensive Epilepsy Center, Phoenix, Arizona, United States, 85013
Children's Hospital Los Angeles, Los Angeles, California, United States, 90027
University of Southern California, Los Angeles, California, United States, 90032
UC Health University of Colorado Anshutz, Aurora, Colorado, United States, 80045
Epilepsy Foundation, Bowie, Maryland, United States, 20716
Partners - Massachusetts General Hospital Epilepsy Service (MGH)/ Partners - Brigham and Women's (BWH), Boston, Massachusetts, United States, 02114
Brigham & Women's Hospital, Boston, Massachusetts, United States, 02115
Akron Children's Hospital, Akron, Ohio, United States, 44308
Cincinnati Children's Hospital Comprehensive Epilepsy Center (CCHMC), Cincinnati, Ohio, United States, 45229
University of Cincinnati Gardner Neuroscience Institute Epilepsy Center, Cincinnati, Ohio, United States, 45267
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
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Epilepsy Foundation of America,
Brandy Fureman, PhD, PRINCIPAL_INVESTIGATOR, Epilepsy Foundation
2099-02-14