Project AWARE 2.0 to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research

Description

The Project AWARE 2.0 Survey is intended to gain knowledge about the feelings, attitudes, and beliefs of HD family members, care partners and others affected by HD towards the way drug trials and observational studies are communicated and conducted.

Conditions

Huntington Disease

Study Overview

Study Details

Study overview

The Project AWARE 2.0 Survey is intended to gain knowledge about the feelings, attitudes, and beliefs of HD family members, care partners and others affected by HD towards the way drug trials and observational studies are communicated and conducted.

Project AWARE 2.0 to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research

Project AWARE 2.0 to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research

Condition
Huntington Disease
Intervention / Treatment

-

Contacts and Locations

Rochester

Huntington Study Group, Rochester, New York, United States, 14618

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Participants must either have HD or be at risk for having HD
  • * Participants must be 18 years of age or older
  • * Participants must live in the United States
  • * Inclusion of participants will not be based on race, gender, or ethnicity.

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Huntington Study Group,

Elise Kayson, MS, PRINCIPAL_INVESTIGATOR, HSG

Study Record Dates

2024-09