COMPLETED

Project AWARE 2.0 to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The Project AWARE 2.0 Survey is intended to gain knowledge about the feelings, attitudes, and beliefs of HD family members, care partners and others affected by HD towards the way drug trials and observational studies are communicated and conducted.

Official Title

Project AWARE 2.0 to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research

Quick Facts

Study Start:2024-04-10
Study Completion:2025-12-22
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:COMPLETED

Study ID

NCT06343220

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Participants must either have HD or be at risk for having HD
  2. * Participants must be 18 years of age or older
  3. * Participants must live in the United States
  4. * Inclusion of participants will not be based on race, gender, or ethnicity.
  1. Pregnancy or breastfeeding
  2. Severe psychiatric disorders
  3. Active substance abuse
  4. Unstable medical conditions
  5. Inability to comply with study requirements

Contacts and Locations

Principal Investigator

Amy Brown, MD, MS
PRINCIPAL_INVESTIGATOR
HSG

Study Locations (Sites)

Huntington Study Group
Rochester, New York, 14618
United States

Collaborators and Investigators

Sponsor: Huntington Study Group

  • Amy Brown, MD, MS, PRINCIPAL_INVESTIGATOR, HSG

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2024-04-10
Study Completion Date2025-12-22

Study Record Updates

Study Start Date2024-04-10
Study Completion Date2025-12-22

Terms related to this study

Keywords Provided by Researchers

  • HSG, HD, Observational

Additional Relevant MeSH Terms

  • Huntington Disease