HEalth Advocate for Liver Transplantation: Improving Transition of Care for Adolescent Liver Transplant Recipients

Description

The Health Advocate for Liver Transplant (HEAL-Tx) Transition of Care Pilot is a nonrandomized, open-label intervention pilot of a health advocate intervention aimed to assess feasibility and acceptability of integrating a Health Advocate onto the transplant team to help adolescents transition their care to adult transplant teams. Across studies, health advocate roles vary, and can include coordinating medical care treatment, facilitating financial assistance (e.g., taxi vouchers), and connecting patients to community resources, which can improve self-management, mitigate social risks, and lead to better communication between the healthcare system and the family. In this pilot, the investigators will adapt this intervention for adolescent/young adult liver transplant patients and measure acceptability and feasibility according to RE-AIM.

Conditions

Liver Transplant; Complications, Pediatric ALL

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Study Overview

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Study Details

Study overview

The Health Advocate for Liver Transplant (HEAL-Tx) Transition of Care Pilot is a nonrandomized, open-label intervention pilot of a health advocate intervention aimed to assess feasibility and acceptability of integrating a Health Advocate onto the transplant team to help adolescents transition their care to adult transplant teams. Across studies, health advocate roles vary, and can include coordinating medical care treatment, facilitating financial assistance (e.g., taxi vouchers), and connecting patients to community resources, which can improve self-management, mitigate social risks, and lead to better communication between the healthcare system and the family. In this pilot, the investigators will adapt this intervention for adolescent/young adult liver transplant patients and measure acceptability and feasibility according to RE-AIM.

HEalth Advocate for Liver Transplantation: Improving Transition of Care for Adolescent Liver Transplant Recipients

HEalth Advocate for Liver Transplantation: Improving Transition of Care for Adolescent Liver Transplant Recipients

Condition
Liver Transplant; Complications
Intervention / Treatment

-

Contacts and Locations

San Francisco

University of California San Francisco, San Francisco, California, United States, 94158

Atlanta

Children's Healthcare of Atlanta, Atlanta, Georgia, United States, 30345

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • 1. Patient has received a liver transplant \>1 year ago
  • 2. Study team has screened patient and discussed with the primary transplant practitioner that patient may benefit from the Health Advocate program.
  • 3. Patient has an unmet social risk (e.g., food insecurity) or MLVI \>/= 2.0.
  • 4. Patient will be transferred to adult transplant team in \<6 months.
  • 5. Patient can read and write English or Spanish
  • 6. Patient is between 18-25 years old and can provide informed consent.
  • 7. Patient has a working phone and smart device capable of video and/or audio virtual visits via Zoom.
  • * Patient has significant cognitive impairment.
  • * Does not meet age criteria
  • * Patient is a ward of the state.
  • * Non-English, non-Spanish speakers.
  • * Non-US residents.

Ages Eligible for Study

18 Years to 25 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

University of California, San Francisco,

Sharad Wadhwani, MD, MPH, PRINCIPAL_INVESTIGATOR, University of California, San Francisco

Study Record Dates

2026-06-30