Hospital @ Home Model of Care for Cirrhosis

Description

The purpose of this study is to work with patients diagnosed with end-stage liver disease to understand their perspectives on the Health at Home (H@H) Program, including desired outcomes and expectations, perceived barriers, and drivers. H@H is an emerging model of home-based care, designed to extend traditional, inpatient hospital care which may address these needs. Through H@H, acute medical care services as well as ancillary care such as rehabilitation therapy can be delivered in the home. The study is divided into three phases: Phase 1 occurs while the participant is an inpatient. Phase 2 is when the actual H@H program takes place as part of the participant's clinical care. The study team will not be involved in the Phase 2 - H@H program as it will be conducted by the clinical staff. Phase 3, at which point the participant enters a rehabilitation phase to transition the patient to self-management, involves a research jam session with the participant and caregiver to assess the value of the program.

Conditions

Decompensated Cirrhosis

Study Overview

Study Details

Study overview

The purpose of this study is to work with patients diagnosed with end-stage liver disease to understand their perspectives on the Health at Home (H@H) Program, including desired outcomes and expectations, perceived barriers, and drivers. H@H is an emerging model of home-based care, designed to extend traditional, inpatient hospital care which may address these needs. Through H@H, acute medical care services as well as ancillary care such as rehabilitation therapy can be delivered in the home. The study is divided into three phases: Phase 1 occurs while the participant is an inpatient. Phase 2 is when the actual H@H program takes place as part of the participant's clinical care. The study team will not be involved in the Phase 2 - H@H program as it will be conducted by the clinical staff. Phase 3, at which point the participant enters a rehabilitation phase to transition the patient to self-management, involves a research jam session with the participant and caregiver to assess the value of the program.

The Hospital @ Home Model of Care: A Novel Healthcare Solution for the Management of Decompensated Cirrhosis

Hospital @ Home Model of Care for Cirrhosis

Condition
Decompensated Cirrhosis
Intervention / Treatment

-

Contacts and Locations

Indianapolis

IU School of Medicine, Indianapolis, Indiana, United States, 46202

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Enrolled into IUH's H@H program
  • * At least 18 years of age
  • * Chronic liver disease/cirrhosis based on characteristic clinical, laboratory, and imaging findings
  • * English speaking
  • * Able to provide consent
  • * Caregiver able to be present during the acute phase of care (first 48 hours post-hospital discharge)
  • * Able to perform activities of daily living independently
  • * Lives within IU Health Home service area
  • * Unable to complete study questionnaires due to neurocognitive disease, legal blindness or hearing loss
  • * Transplant of organ other than liver
  • * Pregnant
  • * Incarcerated
  • * New hemodialysis
  • * Blood pressure \< 90/60, Pulse \> 120, O2 \> 6L or \>2L above baseline
  • * HIV+/CD4 count \< 200
  • * Receiving hospice services
  • * Concurrent enrollment in a related research study

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Indiana University,

Study Record Dates

2027-12-31