Navigating Pregnancy and Parenthood With Lyme Disease

Description

This is a mixed methods study exploring the experiences of pregnancy and parenting among participants with Lyme disease. Eligible participants will have been diagnosed with Lyme disease (LD), post-treatment Lyme disease syndrome (PTLDS), and/or chronic Lyme (CL) either during or before a prior pregnancy. Participants will complete quantitative surveys on topics such as their medical history, their child(ren)'s development, and demographic information. They will then participate in a qualitative interview where they will be asked about their experiences with pregnancy and with parenting their child(ren) in the context of their condition.

Conditions

Lyme Disease, Post Treatment Lyme Disease, Chronic Lyme Disease, Tick-Borne Infections, Tick-Borne Diseases, Pregnancy Complications, Parenting

Study Overview

Study Details

Study overview

This is a mixed methods study exploring the experiences of pregnancy and parenting among participants with Lyme disease. Eligible participants will have been diagnosed with Lyme disease (LD), post-treatment Lyme disease syndrome (PTLDS), and/or chronic Lyme (CL) either during or before a prior pregnancy. Participants will complete quantitative surveys on topics such as their medical history, their child(ren)'s development, and demographic information. They will then participate in a qualitative interview where they will be asked about their experiences with pregnancy and with parenting their child(ren) in the context of their condition.

Mixed Methods Study on Navigating Pregnancy and Parenthood With Lyme Disease

Navigating Pregnancy and Parenthood With Lyme Disease

Condition
Lyme Disease
Intervention / Treatment

-

Contacts and Locations

Washington

Children's National Hospital, Washington, District of Columbia, United States, 20010

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Over 18 years of age and reside in the United States or Canada
  • * Diagnosed with acute Lyme disease, PTLDS, and/or Chronic Lyme by a health care provider while they were pregnant OR PTLDS/CL prior to becoming pregnant with ongoing symptoms during pregnancy
  • * Under 18 years of age
  • * Live outside of the United States or Canada
  • * Never been diagnosed with Lyme disease by a medical provider
  • * Never been pregnant
  • * Never given birth to a liveborn infant
  • * Previously participated in a qualitative study about their experience with Lyme disease
  • * Do not want to agree to having their interviews audio recorded

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

FEMALE

Accepts Healthy Volunteers

No

Collaborators and Investigators

Children's National Research Institute,

Sarah B. Mulkey, MD, PhD, PRINCIPAL_INVESTIGATOR, Children's National Research Institute

Study Record Dates

2025-06-01