RESPECT: (REsearching Stigma in PEdiatric Cancer Tool)

Description

Researchers want to learn more about the way stigma affects children with cancer and their caregivers. They want to develop two clinical tools to identify and measure stigma in the pediatric cancer population within culturally diverse global settings of the United States, Guatemala, and Jordan. Primary Objectives * Develop two clinical tools that can be used to identify and measure stigma as experienced by (1) pediatric oncology patients/survivors and (2) their guardians/caregivers in culturally diverse global settings. * Pilot new stigma tools in geographically and culturally diverse cancer referral settings in the United States, Guatemala, and Jordan.

Conditions

Stigma

Study Overview

Study Details

Study overview

Researchers want to learn more about the way stigma affects children with cancer and their caregivers. They want to develop two clinical tools to identify and measure stigma in the pediatric cancer population within culturally diverse global settings of the United States, Guatemala, and Jordan. Primary Objectives * Develop two clinical tools that can be used to identify and measure stigma as experienced by (1) pediatric oncology patients/survivors and (2) their guardians/caregivers in culturally diverse global settings. * Pilot new stigma tools in geographically and culturally diverse cancer referral settings in the United States, Guatemala, and Jordan.

RESPECT: (REsearching Stigma in PEdiatric Cancer Tool)

RESPECT: (REsearching Stigma in PEdiatric Cancer Tool)

Condition
Stigma
Intervention / Treatment

-

Contacts and Locations

Memphis

St. Jude Children's Research Hospital, Memphis, Tennessee, United States, 38105

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Cognitive Debriefing and Pilot Data Collection - Patients/Survivors
  • * Age 8 to 17.9 years of age
  • * Active cancer patients or survivors of cancer
  • * Cognitive Debriefing and Pilot Data Collection - Parent/Caregivers
  • * Adult parents or caregivers (\> 18 years of age) of active cancer patients or survivors of cancer.

Ages Eligible for Study

8 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

St. Jude Children's Research Hospital,

Dylan Graetz, MD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

Study Record Dates

2025-06