RECRUITING

RESPECT: (REsearching Stigma in PEdiatric Cancer Tool)

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Researchers want to learn more about the way stigma affects children with cancer and their caregivers. They want to develop two clinical tools to identify and measure stigma in the pediatric cancer population within culturally diverse global settings of the United States, Guatemala, and Jordan. Primary Objectives * Develop two clinical tools that can be used to identify and measure stigma as experienced by (1) pediatric oncology patients/survivors and (2) their guardians/caregivers in culturally diverse global settings. * Pilot new stigma tools in geographically and culturally diverse cancer referral settings in the United States, Guatemala, and Jordan.

Official Title

RESPECT: (REsearching Stigma in PEdiatric Cancer Tool)

Quick Facts

Study Start:2024-07-08
Study Completion:2025-06
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT06470230

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:8 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Cognitive Debriefing and Pilot Data Collection - Patients/Survivors
  2. * Age 8 to 17.9 years of age
  3. * Active cancer patients or survivors of cancer
  4. * Cognitive Debriefing and Pilot Data Collection - Parent/Caregivers
  5. * Adult parents or caregivers (\> 18 years of age) of active cancer patients or survivors of cancer.
  1. Pregnancy or breastfeeding
  2. Severe psychiatric disorders
  3. Active substance abuse
  4. Unstable medical conditions
  5. Inability to comply with study requirements

Contacts and Locations

Study Contact

Dylan Graetz, MD
CONTACT
866-278-5833
referralinfo@stjude.org

Principal Investigator

Dylan Graetz, MD
PRINCIPAL_INVESTIGATOR
St. Jude Children's Research Hospital

Study Locations (Sites)

St. Jude Children's Research Hospital
Memphis, Tennessee, 38105
United States

Collaborators and Investigators

Sponsor: St. Jude Children's Research Hospital

  • Dylan Graetz, MD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2024-07-08
Study Completion Date2025-06

Study Record Updates

Study Start Date2024-07-08
Study Completion Date2025-06

Terms related to this study

Keywords Provided by Researchers

  • Cancer Related Stigma
  • Pediatric Cancer Population
  • Parent/Caregivers
  • Patients/Survivors
  • Diverse global settings

Additional Relevant MeSH Terms

  • Stigma